Every child deserves the chance to grow, thrive, and bring their light into the world. At Blu Genes, we’re dedicated to advancing gene therapy research so families facing rare diseases can hold onto hope, health, and brighter tomorrows. 💙👶
Together, we’re working toward a future where wellness isn’t a wish — it’s reality. ✨
#TeaForBlu #BluGenesFoundation #RareDiseaseResearch #RaisingHope
Oct 8
What an unforgettable day at Velo Blu 2025! 🚴💙 From the stunning backdrop of Peller Estates Winery to the incredible energy of our riders, sponsors, and supporters, every moment was filled with purpose, connection, and hope. Together, we pedaled not just for the ride — but for the future of gene therapy research and the families it will impact around the world. 🌍✨
Thank you to everyone who made this day so meaningful. 💙
#VeloBlu #BluGenesFoundation #RideForHope #RareDiseaseResearch #GeneTherapy
Oct 3
A huge thank you to our amazing Activation Sponsors who helped bring Velo Blu 2025 to life! 💙
To Downsview Kitchens (Halfway Refuel), Mayfair Electric (Entertainment), Miller Thomson (Water Bottles) , O’Neil Electric (Breakfast), and TMG Builders (Décor & Flowers) — your support made every detail of the day unforgettable.
With your support, every ride brings hope and advances vital gene therapy research. 🚴🌟
#VeloBlu #BluGenesFoundation #RideForHope #RareDiseaseResearch #GeneTherapy
Oct 1
A heartfelt thank you to our incredible Velo Blu 2025 Lead sponsors who made this unforgettable day possible. 💙
To our Lead Sponsors — Cityzen (Reception Sponsor), Greybrook (Kit Sponsor), Tercot (Wine Sponsor), Owens Wright (Starting Line Sponsor), Aird & Berlis (Marquee Sponsor), and Rogers (Route Sponsor) — your generosity and commitment drive this event forward.
Together, you are helping us ride toward breakthroughs in gene therapy research and a brighter future for families affected by rare diseases. 🚴🌟
#VeloBlu #BluGenesFoundation #RideForHope #RareDiseaseResearch #GeneTherapy
Sep 30
Unlike complex conditions influenced by lifestyle or environment, genetic disorders are caused by a single, impactful change in our DNA. Just one faulty gene can disrupt vital functions and lead to lifelong health challenges. At Blu Genes, we’re working to better understand these rare conditions – and fund the research that can lead to real, lasting solutions. Because one small mutation shouldn’t define an entire life. 💙
#BluGenesFdn #GeneticDisorders #RareDiseaseAwareness #RareDiseaseResearch #HopeForACure
Sep 25
What a ride! Velo Blu 2025 brought sunshine, speed, and so many smiles to the roads of Niagara-on-the-Lake. From scenic stretches to the finish line cheers, every mile was pure joy.
Thanks to our incredible riders and supporters, this year’s event raised $360,000 — bringing the total from Velo Blu since its inception to over $2 million for rare disease research. 💙
We can’t wait to do it all again. See you next year!
#VeloBlu2025 #BluGenesFdn #RideForRare #HopeForACure #BluEvents
Sep 22
Today’s the day! 💙 We’re thrilled to welcome riders, guests, and supporters to VELO BLU 2025 at the beautiful Peller Estates Winery. Whether you’re cycling for the cause or joining us for the celebration, thank you for showing up and supporting gene therapy research for rare diseases.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #RideForACure
Sep 19
A heartfelt thank you to our VELO BLU sponsors for championing the cause and helping drive vital gene therapy research forward. Your generosity is helping make a difference in the lives of families affected by rare diseases. Special thanks to
@beaconenvironmental, The Biglieri Group, Brettler Mintz foundation,
@cardeahomesinc, @cervini_painting, @dukapm, Goldman Spring Kichler & Sanders LLP, @hariripontariniarchitects, @huntdesign_inc, @liuna183, Mansteel Rebar, Mariani Metal, @multiareadevelopments, The Myriad Holding Corp Ltd, Odan-Detech Consulting Engineers, Natexs Sheet Metal, The Nathan and Lily Silver Family Foundation, @prl_staffers, Robson Carpenter LLP, Premform, @rockstarinnercircle, Schaeffer Dzaldov Purcell, @scotiabank, @staffordhomes, @toredimix, Zelinka Priamo Ltd, and @the_11_inc for being part of this important journey. 💙
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 16
Thank you to our incredible Velo Blu sponsors – your support helps fuel the progress of rare disease research and brings us closer to real breakthroughs in gene therapy.
We’re so grateful to have you riding alongside us:
The Baz Foundation, @cassels_law, Davies Howe, DiMarco Family Foundation, @dmsmetalsltd, @dselengineering, @fcrneighbourhoods, @loopstranixon, Milkin Holding Limited,
@scsconsultinggroupltd, @mytributehome, @wndassociates, urbstrat, and @turnerfleischer 💙
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 16
Thank you to our incredible donors and sponsors for supporting Velo Blu and the Blu Genes Foundation. Your generosity fuels gene therapy research and brings real hope to families affected by rare diseases.
We’re so grateful to have you on this journey.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 16
Huge thanks to our Activation Sponsors for Velo Blu 2025 — @downsview_kitchens,
Mayfair Electric, @millerthomsonllp , @oneilelectric, and tmg_builders. Your incredible support helps make this event possible and drives vital gene therapy research for rare diseases forward. We couldn’t do it without you! 💙
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #ThankYouSponsors
Sep 12
Velo Blu wouldn’t be possible without the incredible support of our sponsors. 💙
A heartfelt thank you to @airdberlislife, @cityzengroup, @greybook, Owens Wright Lawyers, @rogers, and @tercot_communities, for fueling our mission and helping drive rare disease research forward. Your generosity powers more than just a ride – it moves us closer to breakthroughs in gene therapy and a brighter future for families everywhere.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 12
What does progress look like? Sometimes, it looks like a group of riders powering through the vineyards of Niagara-on-the-Lake. Velo Blu is where passion meets purpose, uniting a community of changemakers to fuel gene therapy research for rare diseases. With every registration, donation, and ride, we’re helping turn possibility into progress.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 11
Velo Blu returns Friday, September 19, 2025
Join us at Peller Estates Winery for a day of scenic rides, curated experiences, and meaningful impact—all in support of gene therapy research for rare diseases.
Ride. Celebrate. Give hope.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 9
Groundbreaking research is giving hope to infants with rare genetic disorders. 💙
A recent clinical trial at UMass Chan Medical School tested a robot-assisted gene therapy technique that safely delivered life-changing treatment directly to the thalamus in children as young as 6 months. With precise, high-tech infusion, this approach brings us one step closer to effective therapies for GM2 gangliosidoses and other devastating conditions.
#BluGenesFdn #GeneTherapy #RareDiseaseResearch #HopeInResearch #MedicalInnovation
Sep 4
Tea for Blu was a beautiful afternoon filled with meaning, community, and just the right touch of indulgence. 💙 While the goal was to raise awareness and funds for rare disease research was at the heart of the day, guests also enjoyed a stunning spread of delicate desserts and treats. From heartfelt conversations to sweet moments shared over tea, every detail made this event one to remember.
#TeaForBlu2025 #BluGenesFnd #TaySachs #GeneticResearch #SickKids
Sep 2
We do this work because every child brings light, laughter, and joy into the world. Your support of Blu Genes helps fund critical research for rare genetic disorders, giving more children the chance at a healthy future. Together, we`re protecting the beautiful spark that each child brings.
#BluGenesEvents #BluGenesFoundation #RareDiseaseResearch #HopeForBabies #GeneticCure
Aug 28
Velo Blu is one month away! 🚴️✨ On Friday, September 19, we return to beautiful Niagara-on-the-Lake for another unforgettable day—every mile bringing us closer to change.
Swipe through to see the full itinerary of your day at Velo from a light breakfast, to your ride or curated experiences and celebratory meal.
Since its launch, Velo Blu has raised over $1.8M for groundbreaking research into rare genetic diseases. We’re excited to continue this momentum, all made possible by the generosity of our incredible community.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Aug 19
The gene therapy research we sponsored at @umasschan Medical School for GM2 gangliosidosis has been published in Nature Medicine.
This study represents a significant step forward in advancing treatments
for rare diseases.
Published research shares knowledge, speeds diagnosis and therapy development, and builds on rare disease findings—bringing us closer to targeted treatments and better patient outcomes.
Every discovery is a step toward hope. 💙
Read more: https://blugenes.org/blugenes-news-updates/published-in-nature-medicine-breakthrough-gene-therapy-trial-for-tay-sachs-disease/
#BluGenesFdn #RareDiseaseResearch #HopeInScience
#TogetherWeCan
Aug 15
Why do we ride? 🚴
Blu Genes Foundation Founder Sam Crignano shares his personal connection to our cause and why raising funds for rare genetic diseases is so close to his heart.
We’re proud to have @cityzengroup as our continuing Lead Sponsor, whose support helps drive the Blu Genes Foundation’s mission forward.
Together, we’re riding for hope, for change, and for the families who inspire us every day.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Aug 14
