September is Tay-Sachs Awareness month.⁣
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As you may know, Tay-Sachs is a rare, genetic disease that currently has no cure.⁣
Blu Genes is committed to raising awareness for rare diseases, raising awareness for new research that might advance treatment options and raising awareness for genetic screening.⁣
Help us spread the word and be rare aware! ⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #taysachawareness #veloblu #fundraise #support #charityride #rareaware ...

💙 Thank you to our BLU & YOU Courage Sponsor, the Di Marco Family Foundation 💙⁣⁣
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We’re grateful for our sponsors who have joined us, to learn, support, and provide hope for families faced with this fatal disease. ⁣⁣
Thank you for your support in making the dream of curing Tay-Sachs a reality. ⁣⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #sponsor #thankyou #dimarcofamily ...

One day soon, families will have a viable treatment option for their children diagnosed with Tay-Sachs. An option that was unavailable to us just four years ago today. ⁣⁣
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We are proud of the progress we have made. Help us continue this progress and join our fight!⁣⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #partner ...

💙 Thank you to our BLU & YOU Courage Sponsor, @rogers 💙

We’re grateful for our sponsors who have joined us, to learn, support, and provide hope for families faced with this fatal disease.
Thank you for your support in making the dream of curing Tay-Sachs a reality.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #sponsor #thankyou #rogers ...

Our first grant supported a remarkable team of world class researchers focused on treating Tay-Sachs disease at #UMass.⁣
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We are proud that with your support, Blu Genes takes pride in playing a large role in supporting what is today, the first in-human clinical trial, and the world’s first treatment option for Tay-Sachs disease. This clinical trial is ongoing, and continues to enrol more infants with Tay-Sachs. ⁣
Treatment for pre-symptomatic children is showing great promise.⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #UMass #clinicaltrial ...

💙 Thank you to our BLU & YOU Hope Sponsor, @cityzengroup 💙⁣
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We’re grateful for our sponsors who have joined us, to learn, support, and provide hope for families faced with this fatal disease. ⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #sponsor #thankyou #cityzen #cityzendevelopments ...

Blu Genes was born out of a personal mission to seek treatment beyond palliative care. Blu Genes aims to advance gene therapy research and offer hope to families.⁣⁣
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With tons of support over the last few years, we have made serious strides forward.⁣⁣
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THANK YOU to all that support us! ⁣⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research ...

💙 BLU & YOU 💙⁣⁣
Our first online event, Blu & You! ⁣⁣
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In lieu of our Tea for Blu, we are excited to have you join Blu & You. ⁣⁣
YOU are the reason that we can make change happen for Tay-Sachs Disease research and provide hope for families faced with this fatal disease. ⁣⁣
Join us online, to ‘gather’ and learn about the next great research initiative we are supporting at SickKids, because of you...there is hope.⁣⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #partner #SickKids #Announcement ...

💙 Thank you to our BLU & YOU Legacy Sponsor, @BMOCanada 💙

This ground-breaking research may make the dream of curing this inherited disease come true, and we could not have done it without YOU and your support!
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #sponsor #thankyou #bmo ...

💙 BLU & YOU 💙⁣
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It’s been a year like no other, but despite covid, research continues at pace. ⁣
We ask you help us continue this research to help make it a success.⁣
Join our battle against Tay-Sachs Disease.⁣
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Donate today. Link in bio. ⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #partner #donate #event #fundraise ...

💙 BLU & YOU 💙⁣⁣⁣
Welcome to our first online fundraiser - Blu & You! ⁣⁣⁣
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Though we can’t all be together this year, we need your help to reach this goal! You can still make a big impact in supporting our research with @sickkidsvs by donating the cost of one (or two, or three!) tickets to Blu Genes.⁣⁣⁣
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Help us reach our goal and join our battle of Blu Genes vs. Tay-Sachs Disease.⁣⁣ Link in bio. Donate today!⁣⁣⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #support #event #fundraiser ...

💙 BLU & YOU 💙⁣
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In lieu of our Tea for Blu event, we’re pleased to present Blu & You - our 2021 online fundraising event!⁣
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We’re combining BLU and YOU - the very people that bring us hope in our cure for Tay-Sachs Disease. ⁣
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Donate today. Link in bio.⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #partner #bluandyou #newevent #fundraising #Announcement #donation #fundraiser #support #thankyou ...

“With your support and the support of all our donors and our dedicated Board Members - we will continue to do our work. We will find and fund the best research to help patients and children like mine - to offer hope, where today, there is some.” ⁣⁣
- Sara Margani, Board of Directions, Blu Genes.⁣⁣
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Join Blu Genes Foundation in advancing research for Tay-Sachs Disease. Donate today.⁣⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #partner #SickKids #Announcement ...

For the first time in history, there is tremendous hope for #TaySachs patients and families, with multiple drug development programs and clinical trials underway.⁣
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The treatments currently being explored can give these patients a chance at a new future. We are so excited that our first major philanthropic investment was a homerun! Therapy will now be treating infants and children. ⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #partner #SickKids ⁣ ...

We are spending this Saturday with thoughts of gratitude for our loyal supporters. Whether individual or corporate, YOU have made our research possible. Each donation gifted to Blu Genes has granted us the ability to have made our USD $1.8 million commitment to #UMass, and allow us to continue to support research teams. ⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #partner #SickKids ...

The work that so many tremendous researchers do towards curing rare genetic diseases impacts a small population of people per disease - there is a great challenge to secure large grants to allow their work to progress to a clinical trial and treatment option. ⁣⁣
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This is exactly why Blu Genes was created - to raise funds to advance gene therapy and strategically invest our philanthropic resources in world class research.⁣⁣⁣⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #partner #SickKids ...

Blu Genes is celebrating #MalalaDay today to honour women and children’s rights around the world! Malala has been advocating for women’s rights in education since 2008, and was the youngest recipient for a Nobel Peace Prize.⁣
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Join us as we celebrate #MalalaDay (and her birthday!) to honor the rights of children and women. @malala⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #partner #malala #malaladay #hope ...

The current research we are supporting with @sickkidsvs is the light driving us forward! With strength, motivation, and this amazing team of researchers, we are hopeful for the future. We hope you join our Blu Genes family in making this life saving, gene-altering research a reality.⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #sickkids #sickkidsfoundation ...

In 2018, Blu Genes was able to grant much needed funds to support #genetherapy research at #UMass, for the first in-human clinical trial and potential treatment for Tay-Sachs. There are tremendous advancements ongoing for rare diseases! Now, we are supporting a research team of gene editing experts at @sickkidsvs to address the underlying cause of #TaySachs. ⁣
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #bluevent ...