Celebrating International Women’s Day today! Today we honour all the amazing, strong and talented ...
Mar 8
Celebrating International Women’s Day today! Today we honour all the amazing, strong and talented women in our lives - be it a mother, grandmother, sister, wife, girlfriend, and more.
Happy Women’s Day to all the superhero women we know and love!
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #womensday #IWD
Save the Date! We’re celebrating Blu Genes 5th year of impact with our signature event in support ...
Mar 7
Save the Date! We’re celebrating Blu Genes 5th year of impact with our signature event in support of Blu Genes Foundation - Tea for Blu 2023. An elegantly crafted afternoon with traditional tea service and fun activations!
📅 Make sure to save Sunday, June 4th in your calendars. We hope to see you at the Four Seasons Hotel. @fstoronto
www.blugenes.org
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #savethedate #fundraiser #event #fourseasons
We support #RareDiseaseDay.
Rare is Many. Rare is Strong. Rare is Proud.
It’s important that we light up in solidarity with over 400 million people living with a rare condition.
Head to the link in our bio to donate to Blu Genes today and help support #rarediseaseday
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #rarediseaseday
Everyone deserves equitable opportunities and access to healthcare.
Those with a ...
Feb 27
Everyone deserves equitable opportunities and access to healthcare.
Those with a #raredisease are more likely to face misdiagnosis, treatment inequality, and isolation. Shining a spotlight on rare diseases to raise awareness can help.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
DID YOU KNOW?
1 of 2 patients diagnosed with a rare disease is a child.
Join us ...
Feb 24
DID YOU KNOW?
1 of 2 patients diagnosed with a rare disease is a child.
Join us at Blu Genes as we look to advance gene therapy research at @sickkidsvs
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
For someone to be diagnosed with Tay-Sachs disease, both of their parents would have to be carriers ...
Feb 22
For someone to be diagnosed with Tay-Sachs disease, both of their parents would have to be carriers of the condition. They can both be healthy & not know they are carriers but can pass it down to their child. With a carrier couple, there is a 25% chance for their children to be diagnosed with Tay-Sachs.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
Celebrating #FamilyDay today with our loved ones! Make the most of your Family Day weekend!
...
Feb 20
Celebrating #FamilyDay today with our loved ones! Make the most of your Family Day weekend!
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #familyday
Rare Disease Day is just around the corner.
We continue to raise awareness and generate change ...
Feb 16
Rare Disease Day is just around the corner.
We continue to raise awareness and generate change for the 400 million people living with a rare disease, their families, and their carers.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
Tay-Sachs is a rare genetic disorder that affects the neurological system. Over the course of a ...
Feb 16
Tay-Sachs is a rare genetic disorder that affects the neurological system. Over the course of a couple months, a decline in the neurocognitive system can often be observed.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
Shari Ungerleider is a Tay-Sachs advocate after dealing first-hand with her son’s diagnosis. Her ...
Feb 10
Shari Ungerleider is a Tay-Sachs advocate after dealing first-hand with her son’s diagnosis. Her son seemed completely healthy up until he was a few months old. At that point, Shari realized her son was not reaching certain milestones he should be reaching. Learn more about Shari’s story:
https://blugenes.org/blugenes-news-updates/the-science-behind-screening-for-tay-sachs-disease/
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor
Shari Ungerleider lost her son to Tay-Sachs disease and has spent the last 27 years working to ...
Feb 10
Shari Ungerleider lost her son to Tay-Sachs disease and has spent the last 27 years working to educate people about the importance of genetic screening.
Learn more about Shari and her story at:
https://blugenes.org/blugenes-news-updates/the-science-behind-screening-for-tay-sachs-disease/
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
Your support makes a difference!
Blu Genes continues to fund impactful research focused on rare...
Feb 8
Your support makes a difference!
Blu Genes continues to fund impactful research focused on rare genetic disorders by world-leading experts.
Large grants allow their work to progress toward a clinical trial and, ultimately, a treatment option for patients.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
DID YOU KNOW?
Over 400 million people suffer from a #raredisease globally - which is ...
Feb 7
DID YOU KNOW?
Over 400 million people suffer from a #raredisease globally - which is greater than the population of the U.S.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
From just a tiny sample of blood, a lab can test
for 35 rare diseases in newborns. These rare ...
Feb 3
From just a tiny sample of blood, a lab can test
for 35 rare diseases in newborns. These rare diseases, if left undetected, could lead to a great array of symptoms for the infant from seizures, developmental delays, brain damage, and even death.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
DID YOU KNOW?
95% of rare diseases have no Food and Drug Administration-approved drug ...
Feb 1
DID YOU KNOW?
95% of rare diseases have no Food and Drug Administration-approved drug treatment.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor
THANK YOU! Blu Genes has been fundraising for five years now - and we’re so grateful for the ...
Jan 29
THANK YOU! Blu Genes has been fundraising for five years now - and we’re so grateful for the support we’ve received!
Follow along with us as we share our story and raise awareness for rare diseases.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
As we move into 2023, we are filled with hope as we journey into this new season of opportunity in ...
Jan 26
As we move into 2023, we are filled with hope as we journey into this new season of opportunity in finding treatments for Tay-Sachs!
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
DID YOU KNOW?
80% of rare diseases have genetic origins, meaning they are caused by a ...
Jan 23
DID YOU KNOW?
80% of rare diseases have genetic origins, meaning they are caused by a change or mutation in a person’s DNA. The remainder of #rarediseases are a result of infections, allergies, and environmental causes, or are degenerative and proliferative.
Research at SickKids is working to create cell and humanized models of Tay-Sachs disease - creating ...
Jan 14
Research at SickKids is working to create cell and humanized models of Tay-Sachs disease - creating powerful tools to understand how the disease develops and provide model systems for drug development.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
