Celebrating International Women’s Day today! Today we honour all the amazing, strong and talented women in our lives - be it a mother, grandmother, sister, wife, girlfriend, and more.
Happy Women’s Day to all the superhero women we know and love!
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #womensday #IWD

Celebrating International Women’s Day today! Today we honour all the amazing, strong and talented women in our lives - be it a mother, grandmother, sister, wife, girlfriend, and more.
Happy Women’s Day to all the superhero women we know and love!
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #womensday #IWD
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Save the Date! We’re celebrating Blu Genes 5th year of impact with our signature event in support of Blu Genes Foundation - Tea for Blu 2023. An elegantly crafted afternoon with traditional tea service and fun activations!
 
📅 Make sure to save Sunday, June 4th in your calendars. We hope to see you at the Four Seasons Hotel. @fstoronto
www.blugenes.org 
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #savethedate #fundraiser #event #fourseasons

Save the Date! We’re celebrating Blu Genes 5th year of impact with our signature event in support of Blu Genes Foundation - Tea for Blu 2023. An elegantly crafted afternoon with traditional tea service and fun activations!

📅 Make sure to save Sunday, June 4th in your calendars. We hope to see you at the Four Seasons Hotel. @fstoronto
www.blugenes.org
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #savethedate #fundraiser #event #fourseasons
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We support #RareDiseaseDay. 
Rare is Many. Rare is Strong. Rare is Proud. 

It’s important that we light up in solidarity with over 400 million people living with a rare condition.

Head to the link in our bio to donate to Blu Genes today and help support #rarediseaseday
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #rarediseaseday

We support #RareDiseaseDay.
Rare is Many. Rare is Strong. Rare is Proud.

It’s important that we light up in solidarity with over 400 million people living with a rare condition.

Head to the link in our bio to donate to Blu Genes today and help support #rarediseaseday
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #rarediseaseday
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Everyone deserves equitable opportunities and access to healthcare.

Those with a #raredisease are more likely to face misdiagnosis, treatment inequality, and isolation. Shining a spotlight on rare diseases to raise awareness can help. 
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

Everyone deserves equitable opportunities and access to healthcare.

Those with a #raredisease are more likely to face misdiagnosis, treatment inequality, and isolation. Shining a spotlight on rare diseases to raise awareness can help.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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DID YOU KNOW?

1 of 2 patients diagnosed with a rare disease is a child. 

Join us at Blu Genes as we look to advance gene therapy research at @sickkidsvs
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

DID YOU KNOW?

1 of 2 patients diagnosed with a rare disease is a child.

Join us at Blu Genes as we look to advance gene therapy research at @sickkidsvs
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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For someone to be diagnosed with Tay-Sachs disease, both of their parents would have to be carriers of the condition. They can both be healthy & not know they are carriers but can pass it down to their child. With a carrier couple, there is a 25% chance for their children to be diagnosed with Tay-Sachs. 
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

For someone to be diagnosed with Tay-Sachs disease, both of their parents would have to be carriers of the condition. They can both be healthy & not know they are carriers but can pass it down to their child. With a carrier couple, there is a 25% chance for their children to be diagnosed with Tay-Sachs.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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Celebrating #FamilyDay today with our loved ones! Make the most of your Family Day weekend!
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #familyday

Celebrating #FamilyDay today with our loved ones! Make the most of your Family Day weekend!
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #familyday
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Rare Disease Day is just around the corner.
We continue to raise awareness and generate change for the 400 million people living with a rare disease, their families, and their carers. 
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

Rare Disease Day is just around the corner.
We continue to raise awareness and generate change for the 400 million people living with a rare disease, their families, and their carers.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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Tay-Sachs is a rare genetic disorder that affects the neurological system. Over the course of a couple months, a decline in the neurocognitive system can often be observed.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

Tay-Sachs is a rare genetic disorder that affects the neurological system. Over the course of a couple months, a decline in the neurocognitive system can often be observed.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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Shari Ungerleider is a Tay-Sachs advocate after dealing first-hand with her son’s diagnosis. Her son seemed completely healthy up until he was a few months old. At that point, Shari realized her son was not reaching certain milestones he should be reaching. Learn more about Shari’s story:
https://blugenes.org/blugenes-news-updates/the-science-behind-screening-for-tay-sachs-disease/ 
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor

Shari Ungerleider is a Tay-Sachs advocate after dealing first-hand with her son’s diagnosis. Her son seemed completely healthy up until he was a few months old. At that point, Shari realized her son was not reaching certain milestones he should be reaching. Learn more about Shari’s story:
https://blugenes.org/blugenes-news-updates/the-science-behind-screening-for-tay-sachs-disease/
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor
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Shari Ungerleider lost her son to Tay-Sachs disease and has spent the last 27 years working to educate people about the importance of genetic screening.
Learn more about Shari and her story at:
https://blugenes.org/blugenes-news-updates/the-science-behind-screening-for-tay-sachs-disease/ 
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

Shari Ungerleider lost her son to Tay-Sachs disease and has spent the last 27 years working to educate people about the importance of genetic screening.
Learn more about Shari and her story at:
https://blugenes.org/blugenes-news-updates/the-science-behind-screening-for-tay-sachs-disease/
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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Your support makes a difference! 
Blu Genes continues to fund impactful research focused on rare genetic disorders by world-leading experts. 
Large grants allow their work to progress toward a clinical trial and, ultimately, a treatment option for patients.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

Your support makes a difference!
Blu Genes continues to fund impactful research focused on rare genetic disorders by world-leading experts.
Large grants allow their work to progress toward a clinical trial and, ultimately, a treatment option for patients.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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DID YOU KNOW?

Over 400 million people suffer from a #raredisease globally - which is greater than the population of the U.S.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

DID YOU KNOW?

Over 400 million people suffer from a #raredisease globally - which is greater than the population of the U.S.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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From just a tiny sample of blood, a lab can test
for 35 rare diseases in newborns.  These rare diseases, if left undetected, could lead to a great array of symptoms for the infant from seizures, developmental delays, brain damage, and even death.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

From just a tiny sample of blood, a lab can test
for 35 rare diseases in newborns. These rare diseases, if left undetected, could lead to a great array of symptoms for the infant from seizures, developmental delays, brain damage, and even death.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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DID YOU KNOW?

95% of rare diseases have no Food and Drug Administration-approved drug treatment. 
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor

DID YOU KNOW?

95% of rare diseases have no Food and Drug Administration-approved drug treatment.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor
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THANK YOU! Blu Genes has been fundraising for five years now - and we’re so grateful for the support we’ve received! 

Follow along with us as we share our story and raise awareness for rare diseases.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

THANK YOU! Blu Genes has been fundraising for five years now - and we’re so grateful for the support we’ve received!

Follow along with us as we share our story and raise awareness for rare diseases.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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As we move into 2023, we are filled with hope as we journey into this new season of opportunity in finding treatments for Tay-Sachs! 
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

As we move into 2023, we are filled with hope as we journey into this new season of opportunity in finding treatments for Tay-Sachs!
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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DID YOU KNOW?

80% of rare diseases have genetic origins, meaning they are caused by a change or mutation in a person’s DNA. The remainder of #rarediseases are a result of infections, allergies, and environmental causes, or are degenerative and proliferative.

DID YOU KNOW?

80% of rare diseases have genetic origins, meaning they are caused by a change or mutation in a person’s DNA. The remainder of #rarediseases are a result of infections, allergies, and environmental causes, or are degenerative and proliferative.
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Research at SickKids is working to create cell and humanized models of Tay-Sachs disease - creating powerful tools to understand how the disease develops and provide model systems for drug development. 
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent  #sponsors #thankyou #fundraiser

Research at SickKids is working to create cell and humanized models of Tay-Sachs disease - creating powerful tools to understand how the disease develops and provide model systems for drug development.
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#BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #SickKids #sponsor #charityevent #sponsors #thankyou #fundraiser
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With success in the research being done at @SickKidsvs, the work aims to physically remove the faulty Tay-Sachs mutation and eliminate the disease entirely.

With success in the research being done at @SickKidsvs, the work aims to physically remove the faulty Tay-Sachs mutation and eliminate the disease entirely. ...