Blu Genes Foundation began because of a personal mission to find a cure for a rare and fatal genetic disorder called Tay-Sachs disease. We recognized a much greater need and welcome you to watch our impact video.

A Message of HOPE & THANKS from BGF’s Board of Directors

To all of our supporters, sponsors, advocates and friends,
This year has been filled with some great gains and advancements for research as well as some setbacks and personal loss.

Our mission remains the same; to offer hope to patients, families, and the rare disease community. We are committed to raising funds to advance gene therapy research for those life-saving research projects that don’t always get the spotlight or allocated budgets needed to progress.

We thank each and every one of our donors, sponsors, event participants and advocates for their support; we couldn’t do this without you.

Looking back over the past five years, Blu Genes has made great strides. We have partnered with two prominent North American research hospitals to propel research initiatives that offer real and tangible treatments for infants with Tay-Sachs disease.

We share this success with each of you who have made it possible.

Blu Genes Supports SickKids

In its mission to fight Tay-Sachs Disease, Blu Gene Foundation is joining with SickKids.  The Foundation will commit $360,000 to launch a research study into gene editing. This ground-breaking research may make the dream of curing inherited diseases like Tay-Sachs come true.

Thank you! To all of our Sponsors, Donors and Guests who made our 2nd annual Tea for Blu a great success.

Join us for Tea for Blu in May 2023 - details coming soon

Thank you to all who supported VELO BLU 2022 Presented by Milborne Group.  This year's event did not disappoint and raised necessary funds to advance research for Tay-Sachs disease at SickKids.