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Blu Genes Foundation | NEWS UPDATE

Person previously ineligible for gene therapy granted treatment after antibody-chopping drug clears the way
October 13, 2025

Ryan Cross Senior Science Correspondent SEVILLE, SPAIN — Gene therapies are offering new hope to...

Patient groups push abandoned rare disease gene therapy toward clinical trial

Two rare disease groups have produced the key funding needed to make a gene therapy...

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Sep
Published in Nature Medicine: Breakthrough gene therapy trial for Tay-Sachs Disease
August 15, 2025

Blu Genes Foundation supported: Duel-vector rAAVrh8 gene therapy for GM2 gangliosidosis: a phase I/II trial...

Baby Is Healed With World’s First Personalized Gene-Editing Treatment
May 26, 2025

Article: By Gina Kolata, The New York Times – May 15, 2025 The technique used...

Study identifies a potential treatment for Sandhoff and Tay-Sachs diseases
December 13, 2024

In a groundbreaking study, researchers at McMaster University have identified a potential treatment for Sandhoff...

Blu Genes supports gene therapy at University of Wisconsin-Madison. Gene therapy protects against motor neuron disease.
November 14, 2024

Anjon Audhya The mutation is in the Trk-fused gene, which typically facilitates the transportation of...

Taylor Swift tickets being auctioned off to help fund for Ottawa boy with rare disease
October 27, 2024

A pair of Taylor Swift tickets are being auctioned off in Ottawa to help fund...

Saskatchewan artist fundraising to help family whose son has genetic disease
September 13, 2024

A Regina based artist is using his platform to fundraise in hope of helping a...

Family with child affected by SPG4 visits UMass Chan researchers developing gene therapy
August 14, 2024

A family from Ottawa, Canada, seeking a cure for spastic paraplegia type 4 (SPG4), a...

Ottawa community helping fundraise for boy with rare disease
June 15, 2024

Ottawa came together in Stittsville on Saturday, raising more than $15,000 to help fund a...

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  • About Us
    • c
      • About Us
      • Blu Genes Board of Directors and Committee Members
      • Blu Genes Impact Report
      • Blu Genes 2021 Annual Report
      • Blu Genes 2022/2023 Annual Report
      • Blu Genes 2024 Annual Report
  • Genetic Disorders
    • Genetic Disorders
    • Tay-Sachs Disease
    • SPG4 Cure
    • PMLD Cure
  • Research & Progress
    • SickKids-Genome Editing
    • UMass-Gene Therapy
    • Gene Therapy
  • News
    • News Updates
    • Social Media
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