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Blu Genes Foundation | NEWS UPDATE

Study identifies a potential treatment for Sandhoff and Tay-Sachs diseases
December 13, 2024

In a groundbreaking study, researchers at McMaster University have identified a potential treatment for Sandhoff...

Blu Genes supports gene therapy at University of Wisconsin-Madison. Gene therapy protects against motor neuron disease.
November 14, 2024

Anjon Audhya The mutation is in the Trk-fused gene, which typically facilitates the transportation of...

Taylor Swift tickets being auctioned off to help fund for Ottawa boy with rare disease
October 27, 2024

A pair of Taylor Swift tickets are being auctioned off in Ottawa to help fund...

Saskatchewan artist fundraising to help family whose son has genetic disease
September 13, 2024

A Regina based artist is using his platform to fundraise in hope of helping a...

Family with child affected by SPG4 visits UMass Chan researchers developing gene therapy
August 14, 2024

A family from Ottawa, Canada, seeking a cure for spastic paraplegia type 4 (SPG4), a...

Ottawa community helping fundraise for boy with rare disease
June 15, 2024

Ottawa came together in Stittsville on Saturday, raising more than $15,000 to help fund a...

FDA Approves First Gene Therapy for Children with Metachromatic Leukodystrophy
March 18, 2024

Today, the U.S. Food and Drug Administration approved Lenmeldy (atidarsagene autotemcel), the first FDA-approved gene...

Gene Therapy Allows an 11-Year-Old Boy to Hear for the First Time
January 23, 2024

The genetic treatment targeted a particular kind of congenital deafness and will soon be tried...

Genetic test offers hope for undiagnosed kids, but few insurers offer to pay. Florida Medicaid will
October 24, 2023

Just 48 hours after her birth in a Seattle-area hospital in 2021, Layla Babayev was...

The science behind screening for Tay-Sachs disease
November 3, 2022

Shari Ungerleider lost her son to Tay-Sachs disease and spent the last 27 years working...

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  • About Us
    • c
      • About Us
      • Blu Genes Board of Directors and Committee Members
      • Blu Genes Impact Report
      • Blu Genes 2021 Annual Report
      • Blu Genes 2022/2023 Annual Report
      • Blu Genes 2024 Annual Report
  • Genetic Disorders
    • Genetic Disorders
    • Tay-Sachs Disease
    • SPG4 Cure
  • Research & Progress
    • SickKids-Genome Editing
    • UMass-Gene Therapy
    • Gene Therapy
  • News
    • News Updates
    • Social Media
  • Events
  • Contact Us
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