A heartfelt thank you to our VELO BLU sponsors for championing the cause and helping drive vital gene therapy research forward. Your generosity is helping make a difference in the lives of families affected by rare diseases. Special thanks to
@beaconenvironmental, The Biglieri Group, Brettler Mintz foundation,
@cardeahomesinc, @cervini_painting, @dukapm, Goldman Spring Kichler & Sanders LLP, @hariripontariniarchitects, @huntdesign_inc, @liuna183, Mansteel Rebar, Mariani Metal, @multiareadevelopments, The Myriad Holding Corp Ltd, Odan-Detech Consulting Engineers, Natexs Sheet Metal, The Nathan and Lily Silver Family Foundation, @prl_staffers, Robson Carpenter LLP, Premform, @rockstarinnercircle, Schaeffer Dzaldov Purcell, @scotiabank, @staffordhomes, @toredimix, Zelinka Priamo Ltd, and @the_11_inc for being part of this important journey. 💙
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 16
Thank you to our incredible Velo Blu sponsors – your support helps fuel the progress of rare disease research and brings us closer to real breakthroughs in gene therapy.
We’re so grateful to have you riding alongside us:
The Baz Foundation, @cassels_law, Davies Howe, DiMarco Family Foundation, @dmsmetalsltd, @dselengineering, @fcrneighbourhoods, @loopstranixon, Milkin Holding Limited,
@scsconsultinggroupltd, @mytributehome, @wndassociates, urbstrat, and @turnerfleischer 💙
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 16
Thank you to our incredible donors and sponsors for supporting Velo Blu and the Blu Genes Foundation. Your generosity fuels gene therapy research and brings real hope to families affected by rare diseases.
We’re so grateful to have you on this journey.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 16
Huge thanks to our Activation Sponsors for Velo Blu 2025 — @downsview_kitchens,
Mayfair Electric, @millerthomsonllp , @oneilelectric, and tmg_builders. Your incredible support helps make this event possible and drives vital gene therapy research for rare diseases forward. We couldn’t do it without you! 💙
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #ThankYouSponsors
Sep 12
Velo Blu wouldn’t be possible without the incredible support of our sponsors. 💙
A heartfelt thank you to @airdberlislife, @cityzengroup, @greybook, Owens Wright Lawyers, @rogers, and @tercot_communities, for fueling our mission and helping drive rare disease research forward. Your generosity powers more than just a ride – it moves us closer to breakthroughs in gene therapy and a brighter future for families everywhere.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 12
What does progress look like? Sometimes, it looks like a group of riders powering through the vineyards of Niagara-on-the-Lake. Velo Blu is where passion meets purpose, uniting a community of changemakers to fuel gene therapy research for rare diseases. With every registration, donation, and ride, we’re helping turn possibility into progress.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 11
Velo Blu returns Friday, September 19, 2025
Join us at Peller Estates Winery for a day of scenic rides, curated experiences, and meaningful impact—all in support of gene therapy research for rare diseases.
Ride. Celebrate. Give hope.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Sep 9
Groundbreaking research is giving hope to infants with rare genetic disorders. 💙
A recent clinical trial at UMass Chan Medical School tested a robot-assisted gene therapy technique that safely delivered life-changing treatment directly to the thalamus in children as young as 6 months. With precise, high-tech infusion, this approach brings us one step closer to effective therapies for GM2 gangliosidoses and other devastating conditions.
#BluGenesFdn #GeneTherapy #RareDiseaseResearch #HopeInResearch #MedicalInnovation
Sep 4
Tea for Blu was a beautiful afternoon filled with meaning, community, and just the right touch of indulgence. 💙 While the goal was to raise awareness and funds for rare disease research was at the heart of the day, guests also enjoyed a stunning spread of delicate desserts and treats. From heartfelt conversations to sweet moments shared over tea, every detail made this event one to remember.
#TeaForBlu2025 #BluGenesFnd #TaySachs #GeneticResearch #SickKids
Sep 2
We do this work because every child brings light, laughter, and joy into the world. Your support of Blu Genes helps fund critical research for rare genetic disorders, giving more children the chance at a healthy future. Together, we`re protecting the beautiful spark that each child brings.
#BluGenesEvents #BluGenesFoundation #RareDiseaseResearch #HopeForBabies #GeneticCure
Aug 28
Velo Blu is one month away! 🚴️✨ On Friday, September 19, we return to beautiful Niagara-on-the-Lake for another unforgettable day—every mile bringing us closer to change.
Swipe through to see the full itinerary of your day at Velo from a light breakfast, to your ride or curated experiences and celebratory meal.
Since its launch, Velo Blu has raised over $1.8M for groundbreaking research into rare genetic diseases. We’re excited to continue this momentum, all made possible by the generosity of our incredible community.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Aug 19
The gene therapy research we sponsored at @umasschan Medical School for GM2 gangliosidosis has been published in Nature Medicine.
This study represents a significant step forward in advancing treatments
for rare diseases.
Published research shares knowledge, speeds diagnosis and therapy development, and builds on rare disease findings—bringing us closer to targeted treatments and better patient outcomes.
Every discovery is a step toward hope. 💙
Read more: https://blugenes.org/blugenes-news-updates/published-in-nature-medicine-breakthrough-gene-therapy-trial-for-tay-sachs-disease/
#BluGenesFdn #RareDiseaseResearch #HopeInScience
#TogetherWeCan
Aug 15
Why do we ride? 🚴
Blu Genes Foundation Founder Sam Crignano shares his personal connection to our cause and why raising funds for rare genetic diseases is so close to his heart.
We’re proud to have @cityzengroup as our continuing Lead Sponsor, whose support helps drive the Blu Genes Foundation’s mission forward.
Together, we’re riding for hope, for change, and for the families who inspire us every day.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Aug 14
This year, Velo Blu returns to the breathtaking Peller Estates Winery in Niagara-on-the-Lake—a place where purpose meets beauty.
Join us on Friday, September 19, 2025, and be part of something truly meaningful. Click the link in our bio to secure your spot today.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Aug 12
Each year, Tea for Blu brings our community together to raise awareness for those living with rare genetic disorders. Through meaningful conversations and inspiring stories, we turn awareness into action and hope into progress. 💙
Thank you for being part of the movement.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Aug 7
A smile can speak volumes—joy, strength, and hope. 💙 At Blu Genes, we believe every child deserves the chance to smile and thrive. With support from researchers, care teams, and a committed community, we’re working toward a brighter future for children with rare genetic diseases.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Aug 5
Genetic disorders may seem rare and uncommon, but together they affect millions of children and families around the world. From Tay-Sachs to cystic fibrosis, genetic disorders may be rare individually - but together they impact millions of families worldwide. These conditions affect 1 in 1000 babies and countless loved ones.
At Blu Genes, we’re driving awareness, encouraging early screening, and funding groundbreaking gene therapy research. Together, we’re building a future of knowledge, action, and hope.
Donate Today. Link in Bio.
#BluGenesFdn #GeneticDisorders #RareDiseaseAwareness #RareDiseaseResearch #HopeForACure
Jul 31
At Blu Genes, we are dedicated to ensuring children born with a rare genetic disease have the chance to thrive. Through groundbreaking gene therapy research, we’re working toward a future full of hope, healing, and possibility.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Jul 29
Your support of VELO BLU turns groundbreaking gene therapy research for rare diseases into reality. Join us Friday, September 19 in Niagara-on-the-Lake.
Together, we’re funding hope—one kilometer, one moment, one breakthrough at a time. 💙
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Jul 24
This year’s Tea for Blu featured heartfelt performances—beautiful voices that filled the room with songs of hope and love. The music captured the spirit of the day, honouring the families we support and reminding us why advancing rare disease research is so important.
Tea for Blu 2025 was a true celebration of hope, advocacy, and community impact.
Thank you for being part of this unforgettable afternoon.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Jul 22
