A breakthrough moment in rare disease research: for the first time, a baby has successfully received personalized gene editing therapy to treat a life-threatening condition. Using CRISPR base editing, scientists developed a custom treatment in just six months for KJ, a baby born with severe CPS1 deficiency. Today, KJ is not only surviving—he’s thriving. This remarkable story is proof of what’s possible when science, innovation, and compassion come together. It’s a powerful reminder that for the 350 million people living with rare diseases worldwide, hope is growing—one discovery at a time. 💙
Read more at the link in our bio
#BluGenesFnd #RareDiseaseResearch #GeneTherapy #CRISPR #HopeForRareDiseases
May 26
A breakthrough moment in rare disease research: for the first time, a baby has successfully received personalized gene editing therapy to treat a life-threatening condition. Using CRISPR base editing, scientists developed a custom treatment in just six months for KJ, a baby born with severe CPS1 deficiency. Today, KJ is not only surviving—he’s thriving. This remarkable story is proof of what’s possible when science, innovation, and compassion come together. It’s a powerful reminder that for the 350 million people living with rare diseases worldwide, hope is growing—one discovery at a time. 💙
Read more at the link in our bio
#BluGenesFnd #RareDiseaseResearch #GeneTherapy #CRISPR #HopeForRareDiseases
Lasting impact is made possible by lasting support 💙
At this year’s Tea for Blu, we were deeply touched by a generous donation by a devoted Blu Genes supporter, made in memory of a cherished loved one. This meaningful gesture is a powerful reminder of the love, legacy, and hope that inspire our mission every day. It’s a beautiful way to honour a life while helping to create brighter futures for others.
Thank you for being part of the progress, and the heart, of our foundation.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
May 22
Lasting impact is made possible by lasting support 💙
At this year’s Tea for Blu, we were deeply touched by a generous donation by a devoted Blu Genes supporter, made in memory of a cherished loved one. This meaningful gesture is a powerful reminder of the love, legacy, and hope that inspire our mission every day. It’s a beautiful way to honour a life while helping to create brighter futures for others.
Thank you for being part of the progress, and the heart, of our foundation.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
At Blu Genes, we believe in a future where rare diseases can`t hinder childhoods. Where gene therapy turns uncertainty into hope—and brings smiles back to the faces of kids who deserve nothing less. Every breakthrough starts with belief. Every smile begins with hope. 💙
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
May 20
At Blu Genes, we believe in a future where rare diseases can`t hinder childhoods. Where gene therapy turns uncertainty into hope—and brings smiles back to the faces of kids who deserve nothing less. Every breakthrough starts with belief. Every smile begins with hope. 💙
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Sipping in style 🍰☕ Tea for Blu 2025’s tablescape was nothing short of spectacular—all thanks to the incredible vendors who brought this vision to life.
A heartfelt thank you to:
@roselle_and_co for the charming teacups and dessert towers
@stemzflowers for the breathtaking florals
@simplybeautifuldecor for the gorgeous linen details
@splendidsettings for luxury tabletop styling
@detailzfurniturerentals for the beautiful furniture pieces.
All brought together by the incredible team @museeventco ✨
Your thoughtful touches help us craft an unforgettable experience and we’re so grateful for your generosity and talent!
#TeaForBlu2025 #BluGenesFnd #ThankYou #RareDiseaseResearch #GeneTherapy
May 16
Sipping in style 🍰☕ Tea for Blu 2025’s tablescape was nothing short of spectacular—all thanks to the incredible vendors who brought this vision to life.
A heartfelt thank you to:
@roselle_and_co for the charming teacups and dessert towers
@stemzflowers for the breathtaking florals
@simplybeautifuldecor for the gorgeous linen details
@splendidsettings for luxury tabletop styling
@detailzfurniturerentals for the beautiful furniture pieces.
All brought together by the incredible team @museeventco ✨
Your thoughtful touches help us craft an unforgettable experience and we’re so grateful for your generosity and talent!
#TeaForBlu2025 #BluGenesFnd #ThankYou #RareDiseaseResearch #GeneTherapy
Your support at Tea For Blu 2025 made a real difference—fueling $265,000 toward groundbreaking gene therapy research for a Tay‑Sachs cure. Attendees, sponsors, and volunteers alike came together to turn hope into action and bring us closer to a brighter future. We can’t wait to build on this success at Tea For Blu 2026! 💙🍵
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
May 14
Your support at Tea For Blu 2025 made a real difference—fueling $265,000 toward groundbreaking gene therapy research for a Tay‑Sachs cure. Attendees, sponsors, and volunteers alike came together to turn hope into action and bring us closer to a brighter future. We can’t wait to build on this success at Tea For Blu 2026! 💙🍵
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
This Mother`s Day, we honour the incredible mothers at the heart of every child`s journey - with unwavering strength, endless compassion and love that drives change.
To all of our Mother`s in the rare disease community, whether they`re caring for a child with a rare disease, advocating for a cure, or supporting others along the way, these women are true heroes. 💙🌸
Happy Mother’s Day from all of us at Blu Genes.
#MothersDay #BluGenesFnd #PowerOfMothers #HopeStartsHere
May 11
This Mother`s Day, we honour the incredible mothers at the heart of every child`s journey - with unwavering strength, endless compassion and love that drives change.
To all of our Mother`s in the rare disease community, whether they`re caring for a child with a rare disease, advocating for a cure, or supporting others along the way, these women are true heroes. 💙🌸
Happy Mother’s Day from all of us at Blu Genes.
#MothersDay #BluGenesFnd #PowerOfMothers #HopeStartsHere
At VELO BLU, the ride is just the beginning. What truly moves us are the stories—of families holding onto hope, of children defying the odds, and of real lives changed because of the support this event brings. Every kilometre matters, every voice inspires, and every story reminds us why we ride.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
May 9
At VELO BLU, the ride is just the beginning. What truly moves us are the stories—of families holding onto hope, of children defying the odds, and of real lives changed because of the support this event brings. Every kilometre matters, every voice inspires, and every story reminds us why we ride.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Thank you to everyone who joined us at Tea For Blu 2025 💙 Your presence made the day truly unforgettable—from heartfelt moments and inspiring stories to the warmth of community gathered for a cause that matters. As a sweet send-off, guests left with beautiful goodie bags—our way of saying thank you for being part of something so meaningful.
Big thanks to
@mirajhammamspa, @bvshops, @loccitane, and
@esteelaudercanada for helping us stock these great bags!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
May 8
Thank you to everyone who joined us at Tea For Blu 2025 💙 Your presence made the day truly unforgettable—from heartfelt moments and inspiring stories to the warmth of community gathered for a cause that matters. As a sweet send-off, guests left with beautiful goodie bags—our way of saying thank you for being part of something so meaningful.
Big thanks to
@mirajhammamspa, @bvshops, @loccitane, and
@esteelaudercanada for helping us stock these great bags!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
For families facing a Tay-Sachs diagnosis, hope can feel out of reach. This rare and fatal genetic disorder, caused by a defect in the HEXA gene, leads to the buildup of fatty substances in the brain and spinal cord—robbing infants of motor skills, causing seizures, and ultimately shortening their lives. There is no cure. But at Blu Genes, we believe in changing that.
We’re raising funds to advance gene therapy—research that could one day offer a real treatment, not just symptom management. With your support, we’re bringing visibility, momentum, and hope to families who need it most. 💙
#BluGenesFdn #GeneticDisorder #TaySachsAwareness #RareDiseaseResearch #HopeForACure
May 6
For families facing a Tay-Sachs diagnosis, hope can feel out of reach. This rare and fatal genetic disorder, caused by a defect in the HEXA gene, leads to the buildup of fatty substances in the brain and spinal cord—robbing infants of motor skills, causing seizures, and ultimately shortening their lives. There is no cure. But at Blu Genes, we believe in changing that.
We’re raising funds to advance gene therapy—research that could one day offer a real treatment, not just symptom management. With your support, we’re bringing visibility, momentum, and hope to families who need it most. 💙
#BluGenesFdn #GeneticDisorder #TaySachsAwareness #RareDiseaseResearch #HopeForACure
Get ready to gear up for a cause that goes the distance 💙🚴️ VELO BLU isn’t just about the ride—it’s about showing up in your favourite cycling fit, pushing through the challenge, and making every kilometre count for rare disease research. Whether you`re a seasoned rider or just love a good spin with purpose, this is your moment to ride for something bigger.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
May 2
Get ready to gear up for a cause that goes the distance 💙🚴️ VELO BLU isn’t just about the ride—it’s about showing up in your favourite cycling fit, pushing through the challenge, and making every kilometre count for rare disease research. Whether you`re a seasoned rider or just love a good spin with purpose, this is your moment to ride for something bigger.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
VELO BLU isn’t just a ride—it’s an unforgettable experience at Peller Estates that combines scenic challenge, community spirit, and purpose. 🚴🍷 Whether you’re tackling the course or savoring a glass, every moment helps fuel rare disease research. Mark your calendars for September 19th!
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
May 1
VELO BLU isn’t just a ride—it’s an unforgettable experience at Peller Estates that combines scenic challenge, community spirit, and purpose. 🚴🍷 Whether you’re tackling the course or savoring a glass, every moment helps fuel rare disease research. Mark your calendars for September 19th!
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Step inside the magic of Tea For Blu 2025 💙✨At this year’s event, the halls of the @shangrilato were filled with meaningful conversations, laughter, and the collective power of a community coming together for a cause that matters. Watch the highlights and relive a day that brought beauty, purpose, and hope to the forefront.
Another huge thank you to some of our sponsors @sickkidstoronto, @rbc, @gflenvironmental, @cityzen, @airdberlislife, Mayfair Electric and Edilcan
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 30
Step inside the magic of Tea For Blu 2025 💙✨At this year’s event, the halls of the @shangrilato were filled with meaningful conversations, laughter, and the collective power of a community coming together for a cause that matters. Watch the highlights and relive a day that brought beauty, purpose, and hope to the forefront.
Another huge thank you to some of our sponsors @sickkidstoronto, @rbc, @gflenvironmental, @cityzen, @airdberlislife, Mayfair Electric and Edilcan
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Tea For Blu 2025 was a beautiful celebration of community, compassion, and hope. From the stunning florals and elegant tea service to the inspiring stories shared, every detail came together to create something truly special. Thanks to our generous sponsors, donors, and guests, we raised an incredible $265,000 to move the needle forward for rare disease research. We’re grateful for your support—and already dreaming of next year. 💙🍵
Another huge thank you to some of our sponsors
@sickkidstoronto, @rbc, @gflenvironmental, @cityzen, @airdberlislife, Mayfair Electric and Edilcan
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 25
Tea For Blu 2025 was a beautiful celebration of community, compassion, and hope. From the stunning florals and elegant tea service to the inspiring stories shared, every detail came together to create something truly special. Thanks to our generous sponsors, donors, and guests, we raised an incredible $265,000 to move the needle forward for rare disease research. We’re grateful for your support—and already dreaming of next year. 💙🍵
Another huge thank you to some of our sponsors
@sickkidstoronto, @rbc, @gflenvironmental, @cityzen, @airdberlislife, Mayfair Electric and Edilcan
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
For families affected by rare diseases, hope is more than just a word—it’s the drive to keep going. With over 7,000 rare diseases impacting millions, Blu Genes Foundation is committed to funding the research that brings real possibilities for treatment. Together, we can turn hope into action and science into solutions.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 18
For families affected by rare diseases, hope is more than just a word—it’s the drive to keep going. With over 7,000 rare diseases impacting millions, Blu Genes Foundation is committed to funding the research that brings real possibilities for treatment. Together, we can turn hope into action and science into solutions.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Nine patients with infantile Tay-Sachs disease have received gene therapy as part of an ongoing trial at @umasschan Medical School. Researchers continue to monitor their progress, looking for meaningful improvements—like prolonged communication or the ability to swallow and feed independently. Even small gains could mean more precious time and a better quality of life for these children and their families. Every step forward brings us closer to hope.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Apr 17
Nine patients with infantile Tay-Sachs disease have received gene therapy as part of an ongoing trial at @umasschan Medical School. Researchers continue to monitor their progress, looking for meaningful improvements—like prolonged communication or the ability to swallow and feed independently. Even small gains could mean more precious time and a better quality of life for these children and their families. Every step forward brings us closer to hope.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Velo Blu is a signature charity ride and celebratory event, offering high-end experiences for riders and guests alike. Cyclists take on scenic, challenging routes through Niagara-on-the-Lake, while non- riders enjoy curated activities to `Experience Niagara.`
The day culminates in a celebration at Peller Estates with incredible food, wine, and community—all in support of gene therapy research for rare diseases. Join us for Velo Blu 2025 on Friday, September 19th.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Apr 17
Velo Blu is a signature charity ride and celebratory event, offering high-end experiences for riders and guests alike. Cyclists take on scenic, challenging routes through Niagara-on-the-Lake, while non- riders enjoy curated activities to `Experience Niagara.`
The day culminates in a celebration at Peller Estates with incredible food, wine, and community—all in support of gene therapy research for rare diseases. Join us for Velo Blu 2025 on Friday, September 19th.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Every child deserves the chance to smile, to dream, and to live without the weight of a rare disease. There are great organizations that we are partnered with such as @ntsad , @mathewforbesromerfoundation , and @curetaysachs_foundation who are working to make that a reality by funding life-changing gene therapy research. Because behind every breakthrough is a child who gets to experience more laughter, more milestones, and more moments of pure joy
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Apr 16
Every child deserves the chance to smile, to dream, and to live without the weight of a rare disease. There are great organizations that we are partnered with such as @ntsad , @mathewforbesromerfoundation , and @curetaysachs_foundation who are working to make that a reality by funding life-changing gene therapy research. Because behind every breakthrough is a child who gets to experience more laughter, more milestones, and more moments of pure joy
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Progress in rare disease research is only possible with a dedicated community of researchers, supporters, and families working together. UMass has completed the first-ever human clinical trial for infantile Tay-Sachs, marking a historic step toward treatment. Meanwhile, at @sickkidstoronto , Dr. Ivakine and his team are making strides in gene editing research to change the future of Tay-Sachs. Every breakthrough brings us closer to hope.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 16
Progress in rare disease research is only possible with a dedicated community of researchers, supporters, and families working together. UMass has completed the first-ever human clinical trial for infantile Tay-Sachs, marking a historic step toward treatment. Meanwhile, at @sickkidstoronto , Dr. Ivakine and his team are making strides in gene editing research to change the future of Tay-Sachs. Every breakthrough brings us closer to hope.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
If you’ve ever wanted to make a difference but weren’t sure how, attending a Blu Genes event is the perfect place to start. Whether you ride, sip, or celebrate with us, every event helps fund critical gene therapy research for rare diseases. Join us, be part of something meaningful, and turn hope into action.
#BluGenesFdn #BluEvents #RaisingHope #RareDiseaseResearch #HopeForACure
Apr 15
If you’ve ever wanted to make a difference but weren’t sure how, attending a Blu Genes event is the perfect place to start. Whether you ride, sip, or celebrate with us, every event helps fund critical gene therapy research for rare diseases. Join us, be part of something meaningful, and turn hope into action.
#BluGenesFdn #BluEvents #RaisingHope #RareDiseaseResearch #HopeForACure
Tea For Blu isn’t just about tea—it’s about the lives we touch, the research we fund, and the community we build. Step into a world of sophistication and generosity, where every guest plays a part in advancing gene therapy research for rare diseases. Be part of this extraordinary day.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 10
Tea For Blu isn’t just about tea—it’s about the lives we touch, the research we fund, and the community we build. Step into a world of sophistication and generosity, where every guest plays a part in advancing gene therapy research for rare diseases. Be part of this extraordinary day.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope