We do this work because every child brings light, laughter, and joy into the world. Your support of Blu Genes helps fund critical research for rare genetic disorders, giving more children the chance at a healthy future. Together, we`re protecting the beautiful spark that each child brings.
#BluGenesEvents #BluGenesFoundation #RareDiseaseResearch #HopeForBabies #GeneticCure
Aug 28
Velo Blu is one month away! 🚴️✨ On Friday, September 19, we return to beautiful Niagara-on-the-Lake for another unforgettable day—every mile bringing us closer to change.
Swipe through to see the full itinerary of your day at Velo from a light breakfast, to your ride or curated experiences and celebratory meal.
Since its launch, Velo Blu has raised over $1.8M for groundbreaking research into rare genetic diseases. We’re excited to continue this momentum, all made possible by the generosity of our incredible community.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Aug 19
The gene therapy research we sponsored at @umasschan Medical School for GM2 gangliosidosis has been published in Nature Medicine.
This study represents a significant step forward in advancing treatments
for rare diseases.
Published research shares knowledge, speeds diagnosis and therapy development, and builds on rare disease findings—bringing us closer to targeted treatments and better patient outcomes.
Every discovery is a step toward hope. 💙
Read more: https://blugenes.org/blugenes-news-updates/published-in-nature-medicine-breakthrough-gene-therapy-trial-for-tay-sachs-disease/
#BluGenesFdn #RareDiseaseResearch #HopeInScience
#TogetherWeCan
Aug 15
Why do we ride? 🚴
Blu Genes Foundation Founder Sam Crignano shares his personal connection to our cause and why raising funds for rare genetic diseases is so close to his heart.
We’re proud to have @cityzengroup as our continuing Lead Sponsor, whose support helps drive the Blu Genes Foundation’s mission forward.
Together, we’re riding for hope, for change, and for the families who inspire us every day.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Aug 14
This year, Velo Blu returns to the breathtaking Peller Estates Winery in Niagara-on-the-Lake—a place where purpose meets beauty.
Join us on Friday, September 19, 2025, and be part of something truly meaningful. Click the link in our bio to secure your spot today.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Aug 12
Each year, Tea for Blu brings our community together to raise awareness for those living with rare genetic disorders. Through meaningful conversations and inspiring stories, we turn awareness into action and hope into progress. 💙
Thank you for being part of the movement.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Aug 7
A smile can speak volumes—joy, strength, and hope. 💙 At Blu Genes, we believe every child deserves the chance to smile and thrive. With support from researchers, care teams, and a committed community, we’re working toward a brighter future for children with rare genetic diseases.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Aug 5
Genetic disorders may seem rare and uncommon, but together they affect millions of children and families around the world. From Tay-Sachs to cystic fibrosis, genetic disorders may be rare individually - but together they impact millions of families worldwide. These conditions affect 1 in 1000 babies and countless loved ones.
At Blu Genes, we’re driving awareness, encouraging early screening, and funding groundbreaking gene therapy research. Together, we’re building a future of knowledge, action, and hope.
Donate Today. Link in Bio.
#BluGenesFdn #GeneticDisorders #RareDiseaseAwareness #RareDiseaseResearch #HopeForACure
Jul 31
At Blu Genes, we are dedicated to ensuring children born with a rare genetic disease have the chance to thrive. Through groundbreaking gene therapy research, we’re working toward a future full of hope, healing, and possibility.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Jul 29
Your support of VELO BLU turns groundbreaking gene therapy research for rare diseases into reality. Join us Friday, September 19 in Niagara-on-the-Lake.
Together, we’re funding hope—one kilometer, one moment, one breakthrough at a time. 💙
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Jul 24
This year’s Tea for Blu featured heartfelt performances—beautiful voices that filled the room with songs of hope and love. The music captured the spirit of the day, honouring the families we support and reminding us why advancing rare disease research is so important.
Tea for Blu 2025 was a true celebration of hope, advocacy, and community impact.
Thank you for being part of this unforgettable afternoon.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Jul 22
Registration is now open for Velo Blu 2025!
Join the cause on Friday, September 19, 2025, at Peller Estates Winery. Whether you`re cycling scenic routes or enjoying curated experiences, your participation supports vital gene therapy research for rare diseases.
Together, we ride for hope. Click the link in our bio to secure your spot today.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Jul 17
On behalf of the Tea for Blu Committee, thank you to everyone who joined us and helped make Tea for Blu 2025 such a meaningful and successful event 💙
Your presence, energy, and generosity made the afternoon unforgettable. Because of you, we’re one step closer towards treatments for rare disease.
Your support means the world to us—and to the families we serve.
#TeaForBlu #BluGenesFoundation #RareDiseaseResearch #RaisingHope
Jul 15
Thank you to everyone who made Tea for Blu 2025 such a meaningful and memorable afternoon.💙 From our generous sponsors to @shangrilato for hosting us so beautifully—we couldn’t imagine a more elegant setting for such an important cause.
Together, we’re raising hope, awareness, and the funds needed to change lives.
#TeaForBlu #BluGenesFoundation #RareDiseaseResearch #RaisingHope
Jul 10
Velo Blu is more than just a ride—it’s a movement powered by purpose. 🚴️💙 Since launching, this boutique charity event has raised over $2.2 million for rare disease research, thanks to the incredible generosity of our philanthropic community.
Uniting leaders from real estate, finance, professional services, and beyond, Velo Blu brings people together for one shared mission: to accelerate gene therapy breakthroughs.
Join us on Friday, September 19th, 2025, at Peller Estates Winery in Niagara-on-the-Lake. Be part of something extraordinary.
#VeloBlu #BluGenesFoundation #RideForHope #RareDiseaseResearch #GeneTherapy
Jul 8
Tea for Blu is more than an elegant afternoon—it’s a powerful force for change. 💙
Every cup shared, every conversation sparked, and every voice raised helps shine a light on rare genetic diseases like Tay-Sachs. By speaking up, spreading the word, and supporting critical research, we’re turning compassion into action—and bringing hope to families who need it most.
Thank you for being part of something that truly makes a difference.
#TeaForBlu #BluGenesFoundation #RareDiseaseResearch #TaySachs #HopeInScience
Jul 3
🔬 CRISPR & the Fight Against Tay-Sachs 🔬
At SickKids, Dr. Ivakine and his team are using CRISPR/Cas9 to precisely target and correct the genetic mutations that cause Tay-Sachs. Their research has already led to powerful new cell and human models—crucial steps toward developing safe, effective treatments.
With your support, this work is bringing us closer to a future where CRISPR can offer real hope to families affected by rare disease💙
Learn more at blugenes.org
#HopeForTaySachs #GeneTherapy #RareDiseaseResearch #HopeInScience #BluGenesFoundation #SickKids
Jul 1
At Blu Genes, we believe every child deserves the best chance to grow healthy and strong. From a mother’s loving touch to groundbreaking research, wellness starts with care and hope. Together, we’re supporting families and advancing treatments that give kids the chance to thrive—today and for generations to come. 💙
#BluGenesFoundation #HopeInScience #RareDiseaseResearch #HealthyKids #ChildWellness
Jun 26
Velo Blu is an inspiring charity cycling event that brings together riders and supporters to raise vital funds for gene therapy research targeting rare diseases. Every pedal stroke helps drive breakthroughs that offer hope and new treatments for families in need. Join us this year on September 19th, 2025, at Peller Estates Winery in Niagara-on-the-Lake, and be part of the ride for a brighter future. 💙🚴️
#VeloBlu #RideForHope #GeneTherapy #RareDiseaseResearch #BluGenesFoundation
Jun 24
Blu Genes is dedicated to bringing hope to families affected by Tay-Sachs and other rare diseases. Through advancing cutting-edge research and supporting breakthrough gene therapies, we’re working tirelessly to change the future for these children and their loved ones. Because every family deserves a chance at hope and healing💙
#HopeForTaySachs #BluGenesFoundation #RareDiseaseResearch #GeneTherapy #FamiliesFirst
Jun 19
