Progress happens when a community comes together. Through Tea for Blu, vital funding has helped advance Tay-Sachs gene-editing research and move promising science closer to the patients who need it most. That impact is only possible because of the generosity, belief, and shared commitment of this community.
As we look ahead, we`re excited for Tea for Blu 2026 and the opportunity to gather, connect, and continue pushing research forward. Together, we remain united in offering hope for families affected by rare genetic disease.
#TeaForBlu #BluGenesFdn #TaySachsResearch #RareDiseaseResearch #GeneTherapy #HopeInScience
Feb 5
A smile can hold so much meaning—hope, resilience, and the promise of a brighter tomorrow. At Blu Genes, we’re committed to advancing gene therapy research so families have the chance for healthier tomorrows. Because progress in science isn’t just measured in data—it’s measured in time. Time for more milestones, more moments, and more memories made together.
#BluGenesFdn #RareDiseaseResearch #HopeThroughScience #GeneTherapy #BrighterFutures
Feb 3
Breakthroughs don’t happen overnight—they’re built in labs like this, by researchers pushing for answers that families have been waiting years to hear.
Thanks to your support, teams at SickKids and UMass are advancing gene therapy and gene-editing research that’s uncovering new treatment possibilities for rare genetic disorders. Every discovery moves us closer to safer, more effective options—and to a future where more children can receive the care they deserve.
#BluGenesFdn #GeneTherapy #RareDiseaseResearch #ScientificBreakthroughs #HopeForFamilies
Jan 30
Sunshine, smiles, and pedals in motion 💙
Velo Blu continues to bring together an amazing community riding for rare disease research. Since the first ride, Velo Blu has raised over $2 million, turning every kilometre into hope for families affected by rare genetic disorders. Thank you to everyone who has joined and supported us.
#VeloBlu #BluGenesFdn #RareDiseaseResearch #GeneTherapy #CommunityImpact
Jan 28
Thanks to the generosity and support shown at events like Velo Blu, we’ve been able to fund essential therapy trials that advance treatments and offer hope to children and families across our community.
As we look ahead, we remain committed to expanding our impact and continuing this vital work in the year to come.
#BluGenesFdn #RareDiseaseResearch #GeneTherapy #CommunitySupport #HopeThroughResearch
Jan 26
What does hope in motion look like? It’s a group of riders pushing toward a common goal. Velo Blu transforms passion into purpose, raising vital funds for gene therapy research. Every rider helps move progress forward.
We cant wait to see you at Velo Blu 2026 and make an impact together.
Friday, September 18, 2026
#BluGenesFdn #BluEvents #VeloBlu20256 #RareDiseaseResearch #HopeForACure
Jan 22
At Blu Genes, our events bring together connection, compassion and purpose—all in support of life-changing gene therapy research. Join us and be part of the progress.
Stay tuned for event updates at blugenes.org
#HopeForTomorrow #BluGenes #RareDiseaseResearch
Jan 21
Tea For Blu is a heartfelt celebration of community and purpose. Guests come together for an elegant afternoon tea, united in supporting groundbreaking gene therapy research. Every moment shared helps bring hope to families facing rare genetic disorders.
Looking forward to welcoming you at Tea for Blu 2026 and creating meaningful change together.
Sunday, May 3, 2026
#TeaForBlu2026 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Jan 20
Some moments say everything without a single word—the quiet strength of a tiny hand, the hope held between parent and child, the possibility of a future filled with more beginnings than limits.
At Blu Genes, these are the moments that fuel our work. Every breakthrough, every partnership, every step forward is driven by the belief that children living with rare genetic disorders deserve time, health, and a chance to grow.
Thank you for standing with us, supporting the research that brings families closer to answers—and closer to hope.
#BluGenesFdn #RareDiseaseResearch #GeneTherapy #FamilyHope #MakingADifference
Jan 19
Together, we’re changing what’s possible.
From a mission that began with Tay-Sachs to a growing movement for rare genetic diseases, Blu Genes continues to fund the research that turns hope into progress. Thanks to your support, we’ve raised over $4 million to advance gene therapy and bring new possibilities to families facing rare conditions. Every dollar moves us closer to treatments, and to brighter futures.
#BluGenesFdn #GeneticDisorder #GeneTherapy #RareDiseaseAwareness #HopeThroughResearch
Jan 13
Behind every breakthrough in rare disease research is a community of people who choose to show up, speak up, and support the work that changes lives.
Supporters like Alex Raponi and Mary DeCaria remind us that progress isn’t just made in labs—it’s built through conversations, advocacy, and a shared belief that families deserve hope. Their words reflect what drives Blu Genes forward.
Thank you to everyone who gives their voice, time, and generosity to this mission. Together, we’re creating the ripple effect that leads to real change.
#RareDiseaseResearch #AdvocacyInAction #BluGenesFdn #GeneTherapy #HopeForFamilies
Jan 8
This year reminded us how powerful it is when people come together with a shared purpose. From heartfelt conversations to packed rooms filled with energy and generosity, every moment helped fuel the work that’s changing the future of rare disease.
Because of supporters like you, research moved forward, families felt seen, and real progress was made. Thank you for being part of the momentum that made this past year matter.
Join us to make this year even greater.
#RareDiseaseResearch #CommunityImpact #GeneTherapy #BluGenesFdn #MakingADifference
Jan 6
Your support is transforming what’s possible for families affected by rare genetic disorders. 💙
Since 2017, Blu Genes donors have helped fuel scientific firsts, launch new research programs, and accelerate global partnerships that move lifesaving treatments closer to reality. Swipe to read more about our groundbreaking progress.
Thank you for your continued support. We look forward to the impact we will make together in the year ahead.
#RareDiseaseResearch #GeneTherapy #BluGenesFdn #ScientificBreakthroughs #HopeThroughResearch
Jan 2
In moments of quiet love like this, the importance of our mission becomes so clear. 💙
Every gift helps advance gene therapy research that gives families hope for healthier tomorrows.
This season, please consider supporting the breakthroughs that could change a child`s future. Donations made before midnight tomorrow will receive a 2025 charitable tax receipt.
Together, we can bring more moments like this into the world.
#BluGenesFdn #GeneTherapy #RareDiseaseResearch #HopeForFamilies #GiveHope
Dec 30
In this season of giving, we’re reminded how powerful our community is, and what’s possible when we come together. Every donation, partnership, and shared effort help drive research and bring real hope to families affected by rare disease.
Thank you for being part of our mission, and turning generosity into hope 💙
See the impact of your support in our 2025 Annual Report at blugenes.ors (link in bio)
Dec 25
A breakthrough in motion 💙
Thanks to support from Blu Genes, experts at SickKids are seeing gene editing reach the brain and improve Tay-Sachs symptoms in preclinical research models for the first time ever. Each discovery brings us closer to future treatments — and renewed hope for families affected by rare disease.
#BluGenesFoundation #TaySachs #GeneTherapy #RareDiseaseResearch #HopeForACure
Dec 23
There’s still time to make your impact this year. 💙 Every dollar brings us closer to life-changing treatments for children and families affected by rare genetic diseases.
For donations to qualify for a 2025 tax receipt, please ensure your gift is received by midnight on December 31.
#BluGenesFoundation #YearEndGiving #RareDiseaseResearch #HopeThroughScience
Dec 18
Thanks to your generous support, Blu Genes is driving real progress in advancing research for rare childhood genetic disorders. This holiday season, we’re celebrating the breakthroughs you’ve helped make possible—from advancing the first-ever Tay-Sachs clinical trial to supporting world-leading gene-editing research at SickKids. Together, we’re turning hope into action for families who need it most.
#BluGenesFdn #RareDiseaseResearch #GeneTherapy #HopeInAction
Dec 16
Blu Genes began from a personal mission, Siena was diagnosed with Tay-Sachs disease in her first year of life.
Through the dedication of her family and the entire Blu Genes community her legacy has become a force for hope, driving research, inspiring action, and giving other children the chance to live the future they deserve.
Every step forward is for children like Siena who need our help to bring research to light and hope to their lives.
#BluGenesFdn #GeneticDisorder #HopeThroughResearch #RareDiseaseAwareness #GeneTherapy
Dec 11
Every breakthrough begins with hope. 💙
Thanks to the generosity of our community, Blu Genes has raised over $4 million to advance gene therapy research for rare genetic disorders. Each milestone brings us closer to a future where every child has the chance to move, grow, and thrive.
Together, we’re turning hope into healing, one discovery at a time.
#BluGenesFdn #HopeThroughResearch #RareDiseaseAwareness #GeneTherapy #MakingADifference
Dec 9
