Save the Date! ☕✨
Our 5th annual Tea for Blu returns on April 13th, 2025, at the Shangri-La Hotel, Toronto. Join us for an elegant afternoon of connection, awareness, and impact as we come together to support rare disease research. Stay tuned for details on how you can take part in this unforgettable event.
#TeaForBlu #BluGenesFdn #RareDiseaseResearch #GeneticResearch #RaisingHope
Feb 25
Save the Date! ☕✨
Our 5th annual Tea for Blu returns on April 13th, 2025, at the Shangri-La Hotel, Toronto. Join us for an elegant afternoon of connection, awareness, and impact as we come together to support rare disease research. Stay tuned for details on how you can take part in this unforgettable event.
#TeaForBlu #BluGenesFdn #RareDiseaseResearch #GeneticResearch #RaisingHope
Your child’s health is everything. 💙
Every heartbeat, every giggle, and every milestone matters. We’re proud to support groundbreaking research that helps families experience more joyful moments together. Because every baby deserves a bright, healthy future—one where rare diseases don’t stand in the way.
#BluGenesFdn #GeneticCure #RaisingHope #RareDiseaseResearch #HopeInScience
Feb 20
Your child’s health is everything. 💙
Every heartbeat, every giggle, and every milestone matters. We’re proud to support groundbreaking research that helps families experience more joyful moments together. Because every baby deserves a bright, healthy future—one where rare diseases don’t stand in the way.
#BluGenesFdn #GeneticCure #RaisingHope #RareDiseaseResearch #HopeInScience
💙 Advancing Gene Therapy. Offering Hope. 💙
SPG4 is a rare, progressive disease with no current cure, causing irreversible neuron damage and, ultimately, paralysis. But there is hope.
A world-class team at UMass, Drexel University, University Wisconsin-Madison, and Boston Children’s Hospital is working urgently to develop a gene therapy cure to replace the mutated SPAST gene. Critical funding is needed to move through all research phases and reach human clinical trials.
Every step brings us closer to a cure for every 1 in 50,000 children impacted by SPG4 worldwide. Together, we can make it happen.
#HopeForSPG4 #GeneticDisorder #RareDiseaseResearch #CureSPG4 #BluGenesFoundation
Feb 18
💙 Advancing Gene Therapy. Offering Hope. 💙
SPG4 is a rare, progressive disease with no current cure, causing irreversible neuron damage and, ultimately, paralysis. But there is hope.
A world-class team at UMass, Drexel University, University Wisconsin-Madison, and Boston Children’s Hospital is working urgently to develop a gene therapy cure to replace the mutated SPAST gene. Critical funding is needed to move through all research phases and reach human clinical trials.
Every step brings us closer to a cure for every 1 in 50,000 children impacted by SPG4 worldwide. Together, we can make it happen.
#HopeForSPG4 #GeneticDisorder #RareDiseaseResearch #CureSPG4 #BluGenesFoundation
True health is more than just physical - it`s about well-being in every sense. At Blu Genes we`re committed to advancing research that provides Hope. Hope for children with rare disease to thrive without the impact of the disorders they were born with.
Let`s keep working together to bring more hope, more smiles, more joy and more time.
#HealthAndHappiness #HopeInAction #BluGenes #BetterHealthForAll
Feb 13
True health is more than just physical - it`s about well-being in every sense. At Blu Genes we`re committed to advancing research that provides Hope. Hope for children with rare disease to thrive without the impact of the disorders they were born with.
Let`s keep working together to bring more hope, more smiles, more joy and more time.
#HealthAndHappiness #HopeInAction #BluGenes #BetterHealthForAll
🌸 Tea for Blu 2024 🌸
On April 7th, 2024, we hosted our 4th annual Tea for Blu at the iconic Four Seasons Hotel, Toronto. Guests enjoyed an elegant afternoon of connection and tradition in the beautiful Aria Ballroom.
We’re proud to support SickKids Hospital and Dr. Ivakine’s Lab as they advance groundbreaking CRISPR/Cas9 gene editing research for Tay-Sachs disease. Together, we’re working toward a meaningful treatment—and potentially a cure.
Thank you to our sponsors and guests for making this impactful event possible.
✨ Save the date for Tea for Blu 2025 - Sunday April 13th
#TeaForBlu #BluGenesFoundation #GeneEditing #TaySachsResearch #CRISP
Feb 11
🌸 Tea for Blu 2024 🌸
On April 7th, 2024, we hosted our 4th annual Tea for Blu at the iconic Four Seasons Hotel, Toronto. Guests enjoyed an elegant afternoon of connection and tradition in the beautiful Aria Ballroom.
We’re proud to support SickKids Hospital and Dr. Ivakine’s Lab as they advance groundbreaking CRISPR/Cas9 gene editing research for Tay-Sachs disease. Together, we’re working toward a meaningful treatment—and potentially a cure.
Thank you to our sponsors and guests for making this impactful event possible.
✨ Save the date for Tea for Blu 2025 - Sunday April 13th
#TeaForBlu #BluGenesFoundation #GeneEditing #TaySachsResearch #CRISP
At Blu Genes, we`re deeply proud to be part of work that brings families together—helping them stay hopeful for a brighter future. Every step forward in research is a step closer to meaningful change for families affected by rare diseases.
Together, we can create a world where hope and healing unite.
#FamilyFirst #HopeForTomorrow #BluGenes #MakingADifference
Feb 6
At Blu Genes, we`re deeply proud to be part of work that brings families together—helping them stay hopeful for a brighter future. Every step forward in research is a step closer to meaningful change for families affected by rare diseases.
Together, we can create a world where hope and healing unite.
#FamilyFirst #HopeForTomorrow #BluGenes #MakingADifference
🌟 Save the Date: Tea for Blu 2025 🌟
Join us for an inspiring afternoon at Tea for Blu, a fundraiser supporting groundbreaking Tay-Sachs research at SickKids and Dr. Ivakine’s lab.
📅 Date: Sunday, April 13th, 2025
📍 Location: Shangri-La Hotel, Toronto
Since 2019, Tea for Blu has raised over $800K for rare disease research and awareness. Let’s continue raising hope and driving progress together. 💙
#TeaForBlu #BluGenesFoundation #RareDiseaseResearch #TaySachs #raisinghope
Feb 4
🌟 Save the Date: Tea for Blu 2025 🌟
Join us for an inspiring afternoon at Tea for Blu, a fundraiser supporting groundbreaking Tay-Sachs research at SickKids and Dr. Ivakine’s lab.
📅 Date: Sunday, April 13th, 2025
📍 Location: Shangri-La Hotel, Toronto
Since 2019, Tea for Blu has raised over $800K for rare disease research and awareness. Let’s continue raising hope and driving progress together. 💙
#TeaForBlu #BluGenesFoundation #RareDiseaseResearch #TaySachs #raisinghope
🚀 Helping Kids Reach for the Sky 🚀
When children are given the opportunity to grow and dream, they can soar to new heights. At Blu Genes, we`re dedicated to pushing boundaries in medical research to ensure every child has the chance to live their fullest, healthiest life.
The sky is the limit—let`s keep reaching for it.
#ReachForTheSky #FutureOfHealth #HopeInScience #BluGenes
Jan 30
🚀 Helping Kids Reach for the Sky 🚀
When children are given the opportunity to grow and dream, they can soar to new heights. At Blu Genes, we`re dedicated to pushing boundaries in medical research to ensure every child has the chance to live their fullest, healthiest life.
The sky is the limit—let`s keep reaching for it.
#ReachForTheSky #FutureOfHealth #HopeInScience #BluGenes
🌟 A Historic Breakthrough 🌟
The first-ever human clinical trial for infantile Tay-Sachs has been completed at UMass, bringing new hope to families. Nine patients received gene therapy, and researchers are analyzing results to better understand its impact and refine future treatments.
Blu Genes Foundation Executive Director Nicola Dent expresses deep gratitude to our donors, sponsors, and partners who make this progress possible. Together, we’re driving life-changing advancements for Tay- Sachs and rare disease research. 💙
#TaySachs #RareDiseaseAwareness #GeneTherapy #BluGenesFoundation
Jan 28
🌟 A Historic Breakthrough 🌟
The first-ever human clinical trial for infantile Tay-Sachs has been completed at UMass, bringing new hope to families. Nine patients received gene therapy, and researchers are analyzing results to better understand its impact and refine future treatments.
Blu Genes Foundation Executive Director Nicola Dent expresses deep gratitude to our donors, sponsors, and partners who make this progress possible. Together, we’re driving life-changing advancements for Tay- Sachs and rare disease research. 💙
#TaySachs #RareDiseaseAwareness #GeneTherapy #BluGenesFoundation
🚴VELO BLU 2025 🚴♀️
Mark your calendars! The 6th Annual Velo Blu returns on Friday, September 19th, 2025, at Peller Estates Winery in Niagara-on-the-Lake.
Cyclists can enjoy scenic routes, while non-riders explore curated Niagara experiences. The day wraps with a celebration overlooking the vineyards.
In 2024, Velo Blu raised $400k for rare disease research. Let’s make 2025 even bigger!
#VeloBlu #BluGenesFoundation #RideForHope #NiagaraOnTheLake #CharityEvent
Jan 23
🚴VELO BLU 2025 🚴♀️
Mark your calendars! The 6th Annual Velo Blu returns on Friday, September 19th, 2025, at Peller Estates Winery in Niagara-on-the-Lake.
Cyclists can enjoy scenic routes, while non-riders explore curated Niagara experiences. The day wraps with a celebration overlooking the vineyards.
In 2024, Velo Blu raised $400k for rare disease research. Let’s make 2025 even bigger!
#VeloBlu #BluGenesFoundation #RideForHope #NiagaraOnTheLake #CharityEvent
🌱 Wellness Starts with the Little Things 🌱
Every child deserves to grow, learn, and thrive. Prioritizing wellness—both physical and emotional—is key to nurturing healthy, happy kids. Let`s keep supporting research that paves the way for better treatments and brighter futures.
#ChildWellness #HealthyKids #HopeForTheFuture #BluGenes
Jan 21
🌱 Wellness Starts with the Little Things 🌱
Every child deserves to grow, learn, and thrive. Prioritizing wellness—both physical and emotional—is key to nurturing healthy, happy kids. Let`s keep supporting research that paves the way for better treatments and brighter futures.
#ChildWellness #HealthyKids #HopeForTheFuture #BluGenes
Wishing you a joyful and hopeful holiday season!❄️💙
Thank you for supporting Blu Genes Foundation and helping us fight for a future free from rare genetic diseases.
Happy Holidays!
#HappyHolidays
#BluGenesFamily
Dec 26
Wishing you a joyful and hopeful holiday season!❄️💙
Thank you for supporting Blu Genes Foundation and helping us fight for a future free from rare genetic diseases.
Happy Holidays!
#HappyHolidays
#BluGenesFamily
Our 5th annual Velo Blu ride raised an incredible $400K for rare disease research!
Thank you to all the riders, supporters, and sponsors who made this event a success. Stay tuned for Velo Blu 2025!
#VeloBlu #RideForACure
Dec 26
Our 5th annual Velo Blu ride raised an incredible $400K for rare disease research!
Thank you to all the riders, supporters, and sponsors who made this event a success. Stay tuned for Velo Blu 2025!
#VeloBlu #RideForACure
Reflecting on a year of impact.
Our 2024 Annual Report highlights the incredible progress made in rare disease research, the stories of hope from families, and the milestones we’ve achieved together. Your support fuels every breakthrough.
Explore how your generosity is making a difference and join us as we continue the fight for a future free from untreatable rare genetic diseases.
View the full 2024 Annual Report here: https://blugenes.org/blu-genes-2024-annual-report/
#BluGenesAnnualReport #HopeInAction #RareDiseaseResearch
Dec 25
Reflecting on a year of impact.
Our 2024 Annual Report highlights the incredible progress made in rare disease research, the stories of hope from families, and the milestones we’ve achieved together. Your support fuels every breakthrough.
Explore how your generosity is making a difference and join us as we continue the fight for a future free from untreatable rare genetic diseases.
View the full 2024 Annual Report here: https://blugenes.org/blu-genes-2024-annual-report/
#BluGenesAnnualReport #HopeInAction #RareDiseaseResearch
This season, let’s remember the power of kindness and community✨
Every act of generosity brings us closer to a future without rare diseases. Thank you for being part of our journey.
Together, we can make miracles happen.
#BluGenes #HolidayHope
Dec 25
This season, let’s remember the power of kindness and community✨
Every act of generosity brings us closer to a future without rare diseases. Thank you for being part of our journey.
Together, we can make miracles happen.
#BluGenes #HolidayHope
Missing GivingTuesday? It’s not too late to make a difference!💙
Your donation to Blu Genes Foundation this season will fund critical gene therapy research and bring hope to families battling rare diseases.
#SeasonOfGiving
#HopeForACure
Dec 25
Missing GivingTuesday? It’s not too late to make a difference!💙
Your donation to Blu Genes Foundation this season will fund critical gene therapy research and bring hope to families battling rare diseases.
#SeasonOfGiving
#HopeForACure
A sip of hope. ☕✨
Our 4th annual Tea for Blu raised essential funds for gene therapy research targeting Tay-Sachs disease.
Thanks to our guests and sponsors, we’re one step closer to a cure. Stay tuned for Tea for Blu 2025—where every cup brings hope!
#TeaForBlu #TaySachsResearch
Dec 19
A sip of hope. ☕✨
Our 4th annual Tea for Blu raised essential funds for gene therapy research targeting Tay-Sachs disease.
Thanks to our guests and sponsors, we’re one step closer to a cure. Stay tuned for Tea for Blu 2025—where every cup brings hope!
#TeaForBlu #TaySachsResearch
This holiday season, your support means everything. 💙
By donating to Blu Genes Foundation, you’re helping families affected by rare genetic diseases find hope, healing, and the possibility of a cure.
Together, let’s make this season brighter.
#GiveHope #BluGenes
Dec 18
This holiday season, your support means everything. 💙
By donating to Blu Genes Foundation, you’re helping families affected by rare genetic diseases find hope, healing, and the possibility of a cure.
Together, let’s make this season brighter.
#GiveHope #BluGenes
Precision medicine in action.
At @sickkidsvs, pharmacist Iris Cohn uses pharmacogenetic testing to personalize drug treatments, ensuring children get the right medicine and dose for their unique needs.
Thanks to supporters like you, advancements in rare disease care are possible.
#PrecisionChildHealth #SickKidsVS
Dec 17
Precision medicine in action.
At @sickkidsvs, pharmacist Iris Cohn uses pharmacogenetic testing to personalize drug treatments, ensuring children get the right medicine and dose for their unique needs.
Thanks to supporters like you, advancements in rare disease care are possible.
#PrecisionChildHealth #SickKidsVS
Hope is on the horizon. 🔬
Researchers at UW-Madison, supported by Blu Genes Foundation, are making strides in gene therapy for motor neuron diseases like hereditary spastic paraplegia (HSP).
With innovative technologies like CRISPR-Cas9, they’re moving closer to life-changing treatments.
#GeneTherapy #ResearchMatters
Dec 16
Hope is on the horizon. 🔬
Researchers at UW-Madison, supported by Blu Genes Foundation, are making strides in gene therapy for motor neuron diseases like hereditary spastic paraplegia (HSP).
With innovative technologies like CRISPR-Cas9, they’re moving closer to life-changing treatments.
#GeneTherapy #ResearchMatters