Behind every breakthrough are the families, researchers, and supporters who make it possible. 💙
This year’s Blu Genes Annual Report shares the stories of resilience, discovery, and hope that continue to drive our mission forward.
Read their stories and learn how you can make a difference at blugenes.org (link in bio).
#BluGenesFdn #RareDiseaseAwareness #StoriesOfHope
Dec 6
Every dollar raised brings us closer to a cure. 💙
From Velo Blu to Tea for Blu and community-led initiatives, your generosity has powered groundbreaking gene therapy research and created lasting impact for families facing rare genetic conditions.
Discover the difference you’ve made in our 2025 Annual Report, now live at blugenes.org (link in bio).
#BluGenesFdn #HopeForRare #TogetherForACure
Dec 5
Groundbreaking research is bringing new hope to families affected by Tay-Sachs disease. 💙
In this year’s Blu Genes Annual Report, learn how scientists at SickKids and UMass are advancing gene therapy—proving that progress is possible when passion meets purpose.
Visit blugenes.org (link in bio) to explore the discoveries shaping the future of rare disease research.
#BluGenesFdn #RareDiseaseResearch #HopeForACure #GeneTherapy
Dec 4
Today is Giving Tuesday, a global day of generosity and hope. 💙
Every donation made today helps drive gene therapy research forward, bringing us closer to life-changing treatments for children and families living with rare genetic diseases.
Your support fuels discovery. It brings comfort to families. It turns possibility into progress.
Give hope. Support research. Help make a cure possible.
#GivingTuesday #BluGenesFdn #HopeThroughResearch #RareDiseaseAwareness #GeneTherapy
Dec 2
Giving Tuesday is just four days away. 💙
We’re getting ready to join a global movement of generosity that turns hope into action for children and families affected by rare genetic diseases. Every gift brings us closer to breakthroughs in gene therapy and gives families the chance to dream beyond diagnosis. Together, we can make a lasting impact.
Donate today at the link in our bio.
#GivingTuesday #BluGenesFdn #HopeThroughResearch #GeneTherapy #RareDiseaseAwarenes
Nov 28
Behind every kilometer is a mission 🚴️
Our riders and committee members share what motivates them to support Velo Blu year after year, and why you should be part of it.
Join us as we continue to drive Blu Genes’ mission forward. Ride with purpose. Ride for rare disease research. 💙
#VeloBlu #BluGenesFoundation #RideForHope #RareDiseaseResearch #GeneTherapy
Nov 25
In moments of rest, there’s a quiet kind of hope — the kind that reminds us why we keep going. 💙 Every discovery, every participation, and every kindness helps bring us closer to a future where all children can grow up healthy and strong. Together, we’re turning hope into healing.
#BluGenesFdn #GeneticDisorders #RareDiseaseAwareness #RareDiseaseResearch #HopeForACure
Nov 20
From the elegance of Tea for Blu to the energy of Velo Blu, every event is a celebration of community, compassion, and meaningful progress. 💙
We invite you to experience all that Blu Genes Foundation has to offer — because every moment shared brings us closer to breakthroughs in life-saving gene therapy research.
#BluGenesFdn #TeaForBlu #VeloBlu #RareDiseaseResearch #HopeForACure
Nov 18
From the first pedal to the final toast, Velo Blu 2025 was a ride powered by purpose. 💙
Riders, families, sponsors, and friends came together with one goal in mind: to bring
hope to those living with rare diseases.
Thanks to your support at this year`s Velo Blu, we have reached a remarkable milestone
— more than $4 million raised to date for the Blu Genes Foundation!
Together, we’re fueling research that’s changing the future for families affected by rare
disease.
Thank you to Indigo Events for capturing the energy and heartfelt moments of our event so beautifully.
🎥: @indigoevents.ca
Nov 13
Children like Musa, who live with PMLD—a rare genetic disorder that affects the brain and spinal cord—face immense challenges because their nerve signals can’t properly connect.
But thanks to groundbreaking research from Dr. Kleopa in Cyprus, Dr. Esteves in the USA, and the PMD Foundations around the world, hope is closer than ever. Together, we’re raising $1.7 million to advance a promising gene therapy that could restore myelin and transform lives like Musa’s.
With your support, we can help turn that hope into a cure.
#BluGenesFdn #GeneticDisorder #HopeForACure #RareDiseaseAwareness
Nov 11
One of the many activities to select for your day at Velo — a chance to sip, paint and unwind in the vineyards of Peller Estates Winery. 🎨 Surrounded by friends, laughter and the beauty of Niagara -on-the-Lake, it was a reminder that every part of Velo Blu is about connection, joy, and making a difference.
Join us in 2026 to ride, paint, sip and celebrate. 💙
#BluGenesFdn #VeloBlu2025 #SipAndPaint #RareDiseaseResearch #CreativityForACause
Nov 6
This year’s Experience Niagara at Velo Blu was nothing short of incredible. Participants enjoyed a scenic, leisurely journey through Niagara’s stunning wine country — with curated stops at three local wineries for tastings and unforgettable views.🍷 Thank you to all our participants who helped drive our mission forward — supporting rare disease research in a powerful way.
Cheers to an amazing day — and we’ll see you at Velo Blu 2026!
#VeloBlu #BluGenesFoundation #RideForHope #RareDiseaseResearch #GeneTherapy
Nov 4
A single touch can hold so much — love, strength, and hope for the future. 💙 At Blu Genes, we believe every child deserves the chance to grow, thrive, and reach for tomorrow without the weight of rare disease. Together, we’re holding onto hope — and building a future where every family has one.
#BluGenesFdn #GeneticDisorders #RareDiseaseAwareness #RareDiseaseResearch #HopeForACure
Oct 30
Thanks to your incredible support, Velo Blu events have raised over $2 million since it`s first ride, bringing our total funds raised for the Blu Genes Foundation to $4 million for rare disease research.
To every rider, sponsor and supporter who made this possible, thank you for believing in the cause, the community, and the power of hope on two wheels.
We’re so proud of what we’ve accomplished together. See you at Velo Blu 2026! 🚴 💙
#VeloBlu #BluGenesFoundation #RideForHope #RareDiseaseResearch #GeneTherapy
Oct 28
Tay-Sachs is a rare genetic disorder caused by a defect in the HEXA gene, leading to a build-up of fatty substances that damage the brain and spinal cord. Babies often appear healthy at birth, but symptoms begin within months — loss of motor skills, seizures, and neurological decline. Most children don’t live past age four. 💙
With few treatments and little visibility, families need hope. Blu Genes Foundation is advancing gene therapy research, starting with Tay-Sachs, to help change the future. 🌟
#BluGenesFdn #RareDiseaseAwareness #HopeForTaySachs #GeneticDisorders #HopeForACure
Oct 23
A huge thank you to You & I Paint for hosting our Sip & Paint at Velo Blu! 🎨💙 We`re so inspired by all the creativity our amazing participants shared—thank you for making the day so vibrant and special!
#BluGenesFdn #VeloBlu2025 #SipAndPaint #RareDiseaseResearch #CreativityForACause
Oct 21
Every pedal, every mile, every smile on the road is for the kids who can’t ride themselves — and for the families who dream of a brighter future. Together at Velo Blu, we’re riding toward hope, progress, and a world where every child can thrive. 💙🚴
#VeloBlu #BluGenesFoundation #RideForHope #RareDiseaseResearch #GeneTherapy
Oct 16
Inspiring the next generation 💙 Every pedal, every smile, every young rider reminds us why we do this work. Your support of Blu Genes helps fund critical research for rare genetic disorders, giving more children the chance at a healthy, bright future. Together, we’re keeping their spark alive.
#BluGenesFdn #RareDiseaseAwareness #WholeGenomeSequencing #GeneticDisorders #HopeForACure
Oct 14
Early treatment can make a world of difference—especially for children living with rare genetic diseases. At Blu Genes Foundation, we’re committed to funding the research behind innovative gene therapies, helping make these life-changing treatments more effective and accessible for the families who need them most.
#BluGenesFdn #RareDiseaseAwareness #WholeGenomeSequencing #GeneticDisorders #HopeForACure
Oct 10
Every child deserves the chance to grow, thrive, and bring their light into the world. At Blu Genes, we’re dedicated to advancing gene therapy research so families facing rare diseases can hold onto hope, health, and brighter tomorrows. 💙👶
Together, we’re working toward a future where wellness isn’t a wish — it’s reality. ✨
#TeaForBlu #BluGenesFoundation #RareDiseaseResearch #RaisingHope
Oct 8
