Tay-Sachs is a rare and fatal genetic disorder that progressively destroys nerve cells in the brain and spinal cord. Caused by a mutation in the HEXA gene, it leads to severe neurological decline, with most infants diagnosed rarely living past the age of four. With no cure available, gene therapy research offers the greatest hope for families affected by this devastating disease.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 28
Tay-Sachs is a rare and fatal genetic disorder that progressively destroys nerve cells in the brain and spinal cord. Caused by a mutation in the HEXA gene, it leads to severe neurological decline, with most infants diagnosed rarely living past the age of four. With no cure available, gene therapy research offers the greatest hope for families affected by this devastating disease.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Blu Genes Foundation is dedicated to funding and advancing gene therapy research for rare diseases. With 95% of rare diseases lacking an approved treatment, we bridge the funding gap to accelerate life-changing breakthroughs. By supporting pre-clinical research, we help move promising treatments closer to the families who need them most.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 27
Blu Genes Foundation is dedicated to funding and advancing gene therapy research for rare diseases. With 95% of rare diseases lacking an approved treatment, we bridge the funding gap to accelerate life-changing breakthroughs. By supporting pre-clinical research, we help move promising treatments closer to the families who need them most.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Every Blu Genes event is more than just a gathering—it’s a step toward hope. From elegant luncheons to challenging rides, each event brings together a community dedicated to funding life-changing gene therapy research for rare diseases. Thank you to everyone who joins us on this journey—your support makes all the difference!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 26
Every Blu Genes event is more than just a gathering—it’s a step toward hope. From elegant luncheons to challenging rides, each event brings together a community dedicated to funding life-changing gene therapy research for rare diseases. Thank you to everyone who joins us on this journey—your support makes all the difference!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
The early days of spring are around the corner, the beautiful cherry blossoms are starting to bloom, and for us, that means one thing – it’s Tea For Blu time! Join us for an afternoon of elegance, purpose, and community at the beautiful @shangrilato for our annual Tea For Blu. Every cup, every conversation, and every donation brings us closer to hope.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #SpringCherryBlossom
Image Credit:
@shangrilato
Mar 25
The early days of spring are around the corner, the beautiful cherry blossoms are starting to bloom, and for us, that means one thing – it’s Tea For Blu time! Join us for an afternoon of elegance, purpose, and community at the beautiful @shangrilato for our annual Tea For Blu. Every cup, every conversation, and every donation brings us closer to hope.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #SpringCherryBlossom
Image Credit:
@shangrilato
Step inside Tea For Blu and experience an afternoon of elegance, impact, and inspiration. From beautifully plated treats to heartfelt conversations, every moment is crafted to bring our community together in support of rare disease research. Join us and be part of something truly special.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 24
Step inside Tea For Blu and experience an afternoon of elegance, impact, and inspiration. From beautifully plated treats to heartfelt conversations, every moment is crafted to bring our community together in support of rare disease research. Join us and be part of something truly special.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
To our Silver Spoon Sponsors—
@torlys_flooting , dukaom , @serviceplusaquatics , @therosewoodflooring , @rogers , @pizzanova , Bellport Homes, @torquebuilders , and Zencorp Inc.—thank you for making Tea For Blu 2025 possible. Your contributions help turn hope into action for families affected by rare diseases. We couldn’t do it without you! 💙✨
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 23
To our Silver Spoon Sponsors—
@torlys_flooting , dukaom , @serviceplusaquatics , @therosewoodflooring , @rogers , @pizzanova , Bellport Homes, @torquebuilders , and Zencorp Inc.—thank you for making Tea For Blu 2025 possible. Your contributions help turn hope into action for families affected by rare diseases. We couldn’t do it without you! 💙✨
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Raising a cup to our Steep & Sip Sponsors—Di Marco Family Foundation, @masters_ins , @castlepointnuma , @_archalliance_ ,Cooltech, and
@natexssheetmetal . Your generosity fuels our mission and keeps the conversation going about the importance of rare disease research. Thank you for your incredible support! 💙☕
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 23
Raising a cup to our Steep & Sip Sponsors—Di Marco Family Foundation, @masters_ins , @castlepointnuma , @_archalliance_ ,Cooltech, and
@natexssheetmetal . Your generosity fuels our mission and keeps the conversation going about the importance of rare disease research. Thank you for your incredible support! 💙☕
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mark your calendars for Sunday, April 13, 2025, at the elegant @shangrilato as we come together to support rare disease research. With the generosity of our incredible donors and sponsors, Tea For Blu continues to make a meaningful impact. Thank you for being part of this journey with us!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 23
Mark your calendars for Sunday, April 13, 2025, at the elegant @shangrilato as we come together to support rare disease research. With the generosity of our incredible donors and sponsors, Tea For Blu continues to make a meaningful impact. Thank you for being part of this journey with us!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Every great tea party needs the perfect pairing—thank you to @cityzengroup and @airdberlislife for being our Tea and Scones Sponsors for Tea For Blu 2025! Your support brings warmth and generosity to every cup poured and every scone shared, helping us move closer to breakthroughs in rare disease research.💙🍵
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 22
Every great tea party needs the perfect pairing—thank you to @cityzengroup and @airdberlislife for being our Tea and Scones Sponsors for Tea For Blu 2025! Your support brings warmth and generosity to every cup poured and every scone shared, helping us move closer to breakthroughs in rare disease research.💙🍵
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
A heartfelt thank you to our Legacy Sponsor, Edilcan Development Corporation, and our Majestic Tea Sponsors, Mayfair Electric Ltd, and RBC Wealth Management. Your generous support helps make Tea For Blu a truly meaningful event, bringing our community together to advance rare disease research. We are grateful for your dedication to making a difference!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 22
A heartfelt thank you to our Legacy Sponsor, Edilcan Development Corporation, and our Majestic Tea Sponsors, Mayfair Electric Ltd, and RBC Wealth Management. Your generous support helps make Tea For Blu a truly meaningful event, bringing our community together to advance rare disease research. We are grateful for your dedication to making a difference!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Tea For Blu is more than just an event—it’s a beautiful gathering of community, compassion, and commitment to rare disease research. Guests enjoy an elegant afternoon tea while coming together to make a real difference. With every sip, every story, and every show of support, we bring hope to families who need it most.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 22
Tea For Blu is more than just an event—it’s a beautiful gathering of community, compassion, and commitment to rare disease research. Guests enjoy an elegant afternoon tea while coming together to make a real difference. With every sip, every story, and every show of support, we bring hope to families who need it most.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Tea for Blu at the @shangrilato on Sunday, April 13, 2025, is a chance to enjoy a luxurious high tea experience while coming together to fund critical advancements in gene therapy. This is more than just an event—it’s a gathering of hope, community, and action. Mark your calendar and visit our website for ticket details!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #raisinghope
Mar 21
Tea for Blu at the @shangrilato on Sunday, April 13, 2025, is a chance to enjoy a luxurious high tea experience while coming together to fund critical advancements in gene therapy. This is more than just an event—it’s a gathering of hope, community, and action. Mark your calendar and visit our website for ticket details!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #raisinghope
Tea for Blu 2024 was a beautiful afternoon filled with elegance, purpose, and community. Guests came together to enjoy a luxurious high tea while raising essential funds for rare disease research. Thanks to our incredible supporters, donors, and partners, we took a meaningful step toward advancing gene therapy treatments.
#BluGenesFdn #GeneticCure #RaisingHope #RareDiseaseResearch #HopeInScience
Mar 21
Tea for Blu 2024 was a beautiful afternoon filled with elegance, purpose, and community. Guests came together to enjoy a luxurious high tea while raising essential funds for rare disease research. Thanks to our incredible supporters, donors, and partners, we took a meaningful step toward advancing gene therapy treatments.
#BluGenesFdn #GeneticCure #RaisingHope #RareDiseaseResearch #HopeInScience
Join us for an elegant afternoon in support of rare disease research. Tea for Blu returns on Sunday, April 13, 2025, at the @shangrilato , bringing together guests for a luxurious high tea experience, all while raising critical funds to advance gene therapy research. Enjoy delicious treats, fine teas, and meaningful conversations in a beautiful setting, knowing that every sip supports a brighter future. Tickets are on sale now—visit our website to purchase individual or group tickets!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 21
Join us for an elegant afternoon in support of rare disease research. Tea for Blu returns on Sunday, April 13, 2025, at the @shangrilato , bringing together guests for a luxurious high tea experience, all while raising critical funds to advance gene therapy research. Enjoy delicious treats, fine teas, and meaningful conversations in a beautiful setting, knowing that every sip supports a brighter future. Tickets are on sale now—visit our website to purchase individual or group tickets!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Join us for the 6th Annual Velo Blu on September 19th, 2025 at Peller Estates Winery in Niagara-on-the-Lake. With scenic cycling routes and curated experiences, it’s a day full of adventure, community, and fundraising for rare disease research.
💙 Stay tuned for updates and event details!
#BluGenesFdn ##VeloBlu #RideForHope #HopeForRareDiseases
Mar 18
Join us for the 6th Annual Velo Blu on September 19th, 2025 at Peller Estates Winery in Niagara-on-the-Lake. With scenic cycling routes and curated experiences, it’s a day full of adventure, community, and fundraising for rare disease research.
💙 Stay tuned for updates and event details!
#BluGenesFdn ##VeloBlu #RideForHope #HopeForRareDiseases
Tea for Blu is more than just a gathering—it’s a movement toward better treatments and brighter futures. 💙 Every cup poured, every conversation shared, and every dollar raised supports groundbreaking research. Mark your calendars for April 13th, 2025, and be part of something truly impactful.
#BluGenesFdn #TeaForBlu #RareDiseaseResearch #GeneticResearch #TogetherWeCan
Mar 13
Tea for Blu is more than just a gathering—it’s a movement toward better treatments and brighter futures. 💙 Every cup poured, every conversation shared, and every dollar raised supports groundbreaking research. Mark your calendars for April 13th, 2025, and be part of something truly impactful.
#BluGenesFdn #TeaForBlu #RareDiseaseResearch #GeneticResearch #TogetherWeCan
An afternoon of elegance, impact, and hope. ☕💙 Join us for Tea for Blu on April 13th, 2025, at the Shangri-La Hotel, Toronto. This beautiful event brings people together to support critical research for rare diseases. With your help, we can continue funding breakthroughs that bring hope to families everywhere.
#BluGenesFdn #TeaForBlu #RareDiseaseResearch #GeneticResearch #TogetherWeCan
Mar 11
An afternoon of elegance, impact, and hope. ☕💙 Join us for Tea for Blu on April 13th, 2025, at the Shangri-La Hotel, Toronto. This beautiful event brings people together to support critical research for rare diseases. With your help, we can continue funding breakthroughs that bring hope to families everywhere.
#BluGenesFdn #TeaForBlu #RareDiseaseResearch #GeneticResearch #TogetherWeCan
Every child deserves the chance to run, play, and explore—just like any other. 💙 Through innovation in gene therapy, we’re working toward a future where rare diseases no longer limit children from enjoying life’s simple joys. Because every family deserves the opportunity to live fully, without barriers or fear.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Mar 6
Every child deserves the chance to run, play, and explore—just like any other. 💙 Through innovation in gene therapy, we’re working toward a future where rare diseases no longer limit children from enjoying life’s simple joys. Because every family deserves the opportunity to live fully, without barriers or fear.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
🌟 @jacks_gala: Reaching for the Stars 🌟
Blu Genes is proud to support families like Jack Laidlaw’s as they raise funds for rare disease research. If you’re in the Ottawa area, join Jack on Saturday, May 24th, 2025, for an inspiring evening dedicated to advancing SPG4 research.
📍 The Brookstreet Hotel
🍸 Cocktail Hour Begins at 5:30 PM
At just seven years old, Jack is bravely facing SPG4, an ultra-rare neurodegenerative disease with no approved treatment. Every dollar raised brings us closer to life-changing breakthroughs.
Let’s make a difference—scan the QR code to purchase your tickets today! 💙✨
#BluGenesFdn #ReachForTheStars #RareDiseaseResearch #HopeForRareDiseases #HopeForSPG4
Mar 4
🌟 @jacks_gala: Reaching for the Stars 🌟
Blu Genes is proud to support families like Jack Laidlaw’s as they raise funds for rare disease research. If you’re in the Ottawa area, join Jack on Saturday, May 24th, 2025, for an inspiring evening dedicated to advancing SPG4 research.
📍 The Brookstreet Hotel
🍸 Cocktail Hour Begins at 5:30 PM
At just seven years old, Jack is bravely facing SPG4, an ultra-rare neurodegenerative disease with no approved treatment. Every dollar raised brings us closer to life-changing breakthroughs.
Let’s make a difference—scan the QR code to purchase your tickets today! 💙✨
#BluGenesFdn #ReachForTheStars #RareDiseaseResearch #HopeForRareDiseases #HopeForSPG4
Hope starts with research. 💙
There are over 7,000 rare diseases, affecting 3 million Canadians—two-thirds of them children. Yet, 95% of these diseases have no FDA-approved treatment, leaving families with few options beyond managing symptoms.
At Blu Genes Foundation, we’re bridging the funding gap to propel gene therapy research forward. By partnering with world-leading institutions, we’re ensuring that rare disease research gets the attention and support it deserves. Because no disease is too rare to matter.
#BluGenesFdn #RareDiseaseDay #GeneticDisorder #RareDiseaseResearch #TogetherWeCan
Feb 28
Hope starts with research. 💙
There are over 7,000 rare diseases, affecting 3 million Canadians—two-thirds of them children. Yet, 95% of these diseases have no FDA-approved treatment, leaving families with few options beyond managing symptoms.
At Blu Genes Foundation, we’re bridging the funding gap to propel gene therapy research forward. By partnering with world-leading institutions, we’re ensuring that rare disease research gets the attention and support it deserves. Because no disease is too rare to matter.
#BluGenesFdn #RareDiseaseDay #GeneticDisorder #RareDiseaseResearch #TogetherWeCan