For families facing a Tay-Sachs diagnosis, hope can feel out of reach. This rare and fatal genetic disorder, caused by a defect in the HEXA gene, leads to the buildup of fatty substances in the brain and spinal cord—robbing infants of motor skills, causing seizures, and ultimately shortening their lives. There is no cure. But at Blu Genes, we believe in changing that.
We’re raising funds to advance gene therapy—research that could one day offer a real treatment, not just symptom management. With your support, we’re bringing visibility, momentum, and hope to families who need it most. 💙
#BluGenesFdn #GeneticDisorder #TaySachsAwareness #RareDiseaseResearch #HopeForACure
May 6
For families facing a Tay-Sachs diagnosis, hope can feel out of reach. This rare and fatal genetic disorder, caused by a defect in the HEXA gene, leads to the buildup of fatty substances in the brain and spinal cord—robbing infants of motor skills, causing seizures, and ultimately shortening their lives. There is no cure. But at Blu Genes, we believe in changing that.
We’re raising funds to advance gene therapy—research that could one day offer a real treatment, not just symptom management. With your support, we’re bringing visibility, momentum, and hope to families who need it most. 💙
#BluGenesFdn #GeneticDisorder #TaySachsAwareness #RareDiseaseResearch #HopeForACure
Get ready to gear up for a cause that goes the distance 💙🚴️ VELO BLU isn’t just about the ride—it’s about showing up in your favourite cycling fit, pushing through the challenge, and making every kilometre count for rare disease research. Whether you`re a seasoned rider or just love a good spin with purpose, this is your moment to ride for something bigger.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
May 2
Get ready to gear up for a cause that goes the distance 💙🚴️ VELO BLU isn’t just about the ride—it’s about showing up in your favourite cycling fit, pushing through the challenge, and making every kilometre count for rare disease research. Whether you`re a seasoned rider or just love a good spin with purpose, this is your moment to ride for something bigger.
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
VELO BLU isn’t just a ride—it’s an unforgettable experience at Peller Estates that combines scenic challenge, community spirit, and purpose. 🚴🍷 Whether you’re tackling the course or savoring a glass, every moment helps fuel rare disease research. Mark your calendars for September 19th!
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
May 1
VELO BLU isn’t just a ride—it’s an unforgettable experience at Peller Estates that combines scenic challenge, community spirit, and purpose. 🚴🍷 Whether you’re tackling the course or savoring a glass, every moment helps fuel rare disease research. Mark your calendars for September 19th!
#BluGenesFdn #BluEvents #VeloBlu2025 #RareDiseaseResearch #HopeForACure
Step inside the magic of Tea For Blu 2025 💙✨At this year’s event, the halls of the @shangrilato were filled with meaningful conversations, laughter, and the collective power of a community coming together for a cause that matters. Watch the highlights and relive a day that brought beauty, purpose, and hope to the forefront.
Another huge thank you to some of our sponsors @sickkidstoronto, @rbc, @gflenvironmental, @cityzen, @airdberlislife, Mayfair Electric and Edilcan
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 30
Step inside the magic of Tea For Blu 2025 💙✨At this year’s event, the halls of the @shangrilato were filled with meaningful conversations, laughter, and the collective power of a community coming together for a cause that matters. Watch the highlights and relive a day that brought beauty, purpose, and hope to the forefront.
Another huge thank you to some of our sponsors @sickkidstoronto, @rbc, @gflenvironmental, @cityzen, @airdberlislife, Mayfair Electric and Edilcan
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Tea For Blu 2025 was a beautiful celebration of community, compassion, and hope. From the stunning florals and elegant tea service to the inspiring stories shared, every detail came together to create something truly special. Thanks to our generous sponsors, donors, and guests, we raised an incredible $265,000 to move the needle forward for rare disease research. We’re grateful for your support—and already dreaming of next year. 💙🍵
Another huge thank you to some of our sponsors
@sickkidstoronto, @rbc, @gflenvironmental, @cityzen, @airdberlislife, Mayfair Electric and Edilcan
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 25
Tea For Blu 2025 was a beautiful celebration of community, compassion, and hope. From the stunning florals and elegant tea service to the inspiring stories shared, every detail came together to create something truly special. Thanks to our generous sponsors, donors, and guests, we raised an incredible $265,000 to move the needle forward for rare disease research. We’re grateful for your support—and already dreaming of next year. 💙🍵
Another huge thank you to some of our sponsors
@sickkidstoronto, @rbc, @gflenvironmental, @cityzen, @airdberlislife, Mayfair Electric and Edilcan
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
For families affected by rare diseases, hope is more than just a word—it’s the drive to keep going. With over 7,000 rare diseases impacting millions, Blu Genes Foundation is committed to funding the research that brings real possibilities for treatment. Together, we can turn hope into action and science into solutions.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 18
For families affected by rare diseases, hope is more than just a word—it’s the drive to keep going. With over 7,000 rare diseases impacting millions, Blu Genes Foundation is committed to funding the research that brings real possibilities for treatment. Together, we can turn hope into action and science into solutions.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Nine patients with infantile Tay-Sachs disease have received gene therapy as part of an ongoing trial at @umasschan Medical School. Researchers continue to monitor their progress, looking for meaningful improvements—like prolonged communication or the ability to swallow and feed independently. Even small gains could mean more precious time and a better quality of life for these children and their families. Every step forward brings us closer to hope.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Apr 17
Nine patients with infantile Tay-Sachs disease have received gene therapy as part of an ongoing trial at @umasschan Medical School. Researchers continue to monitor their progress, looking for meaningful improvements—like prolonged communication or the ability to swallow and feed independently. Even small gains could mean more precious time and a better quality of life for these children and their families. Every step forward brings us closer to hope.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Velo Blu is a signature charity ride and celebratory event, offering high-end experiences for riders and guests alike. Cyclists take on scenic, challenging routes through Niagara-on-the-Lake, while non- riders enjoy curated activities to `Experience Niagara.`
The day culminates in a celebration at Peller Estates with incredible food, wine, and community—all in support of gene therapy research for rare diseases. Join us for Velo Blu 2025 on Friday, September 19th.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Apr 17
Velo Blu is a signature charity ride and celebratory event, offering high-end experiences for riders and guests alike. Cyclists take on scenic, challenging routes through Niagara-on-the-Lake, while non- riders enjoy curated activities to `Experience Niagara.`
The day culminates in a celebration at Peller Estates with incredible food, wine, and community—all in support of gene therapy research for rare diseases. Join us for Velo Blu 2025 on Friday, September 19th.
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Every child deserves the chance to smile, to dream, and to live without the weight of a rare disease. There are great organizations that we are partnered with such as @ntsad , @mathewforbesromerfoundation , and @curetaysachs_foundation who are working to make that a reality by funding life-changing gene therapy research. Because behind every breakthrough is a child who gets to experience more laughter, more milestones, and more moments of pure joy
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Apr 16
Every child deserves the chance to smile, to dream, and to live without the weight of a rare disease. There are great organizations that we are partnered with such as @ntsad , @mathewforbesromerfoundation , and @curetaysachs_foundation who are working to make that a reality by funding life-changing gene therapy research. Because behind every breakthrough is a child who gets to experience more laughter, more milestones, and more moments of pure joy
#BluGenesFdn #HealthyKids #ChildWellness #HopeInScience #TogetherWeCan
Progress in rare disease research is only possible with a dedicated community of researchers, supporters, and families working together. UMass has completed the first-ever human clinical trial for infantile Tay-Sachs, marking a historic step toward treatment. Meanwhile, at @sickkidstoronto , Dr. Ivakine and his team are making strides in gene editing research to change the future of Tay-Sachs. Every breakthrough brings us closer to hope.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 16
Progress in rare disease research is only possible with a dedicated community of researchers, supporters, and families working together. UMass has completed the first-ever human clinical trial for infantile Tay-Sachs, marking a historic step toward treatment. Meanwhile, at @sickkidstoronto , Dr. Ivakine and his team are making strides in gene editing research to change the future of Tay-Sachs. Every breakthrough brings us closer to hope.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
If you’ve ever wanted to make a difference but weren’t sure how, attending a Blu Genes event is the perfect place to start. Whether you ride, sip, or celebrate with us, every event helps fund critical gene therapy research for rare diseases. Join us, be part of something meaningful, and turn hope into action.
#BluGenesFdn #BluEvents #RaisingHope #RareDiseaseResearch #HopeForACure
Apr 15
If you’ve ever wanted to make a difference but weren’t sure how, attending a Blu Genes event is the perfect place to start. Whether you ride, sip, or celebrate with us, every event helps fund critical gene therapy research for rare diseases. Join us, be part of something meaningful, and turn hope into action.
#BluGenesFdn #BluEvents #RaisingHope #RareDiseaseResearch #HopeForACure
Tea For Blu isn’t just about tea—it’s about the lives we touch, the research we fund, and the community we build. Step into a world of sophistication and generosity, where every guest plays a part in advancing gene therapy research for rare diseases. Be part of this extraordinary day.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 10
Tea For Blu isn’t just about tea—it’s about the lives we touch, the research we fund, and the community we build. Step into a world of sophistication and generosity, where every guest plays a part in advancing gene therapy research for rare diseases. Be part of this extraordinary day.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Picture this: a stunning venue, delicate teas, decadent treats, and a room filled with purpose. Tea For Blu is more than an afternoon tea—it’s an experience that brings hope to families affected by rare diseases. Join us for an unforgettable event that blends luxury with philanthropy.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 9
Picture this: a stunning venue, delicate teas, decadent treats, and a room filled with purpose. Tea For Blu is more than an afternoon tea—it’s an experience that brings hope to families affected by rare diseases. Join us for an unforgettable event that blends luxury with philanthropy.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Every child deserves the chance to smile, to dream, and to live without the weight of a rare disease. At Blu Genes, we’re working to make that a reality by funding life-changing gene therapy research. Because behind every breakthrough from research centres like @sickkidstoronto & @sickkidsvs means a child gets to experience more laughter, more milestones, and more moments of pure joy.
#TeaForBlu #BluGenesFdn #RareDiseaseResearch #GeneticResearch #RaisingHope
Apr 8
Every child deserves the chance to smile, to dream, and to live without the weight of a rare disease. At Blu Genes, we’re working to make that a reality by funding life-changing gene therapy research. Because behind every breakthrough from research centres like @sickkidstoronto & @sickkidsvs means a child gets to experience more laughter, more milestones, and more moments of pure joy.
#TeaForBlu #BluGenesFdn #RareDiseaseResearch #GeneticResearch #RaisingHope
At Tea For Blu, we’ve thoughtfully curated every detail with
@museeventco —from the exquisite table settings to the meaningful stories shared throughout the event. It’s a day to dress up, enjoy an elegant tea service, and support life-changing research. Will we see you there?
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 3
At Tea For Blu, we’ve thoughtfully curated every detail with
@museeventco —from the exquisite table settings to the meaningful stories shared throughout the event. It’s a day to dress up, enjoy an elegant tea service, and support life-changing research. Will we see you there?
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Sip, savour, and support life- changing research at Tea for Blu on Sunday, April 13, 2025, at the @shangrilato . This elegant afternoon tea is more than a social event—it’s an opportunity to fund groundbreaking gene therapy research for rare diseases that affect millions of children and families. Every cup of tea, every conversation, and every donation brings us closer to treatments and hope for those in need. Join us in making a difference— one sip at a time. A big thanks to
@museeventco for helping us put this event together!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Apr 2
Sip, savour, and support life- changing research at Tea for Blu on Sunday, April 13, 2025, at the @shangrilato . This elegant afternoon tea is more than a social event—it’s an opportunity to fund groundbreaking gene therapy research for rare diseases that affect millions of children and families. Every cup of tea, every conversation, and every donation brings us closer to treatments and hope for those in need. Join us in making a difference— one sip at a time. A big thanks to
@museeventco for helping us put this event together!
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mark your calendars! On Friday, September 19, 2025, VELO BLU returns for another unforgettable ride through the scenic landscapes of Niagara-on-the- Lake. Whether you`re taking on a challenging route or joining our curated experiences, every moment supports groundbreaking gene therapy research. Let’s ride, celebrate, and make a difference—together.
#BluGenesFdn #VeloBlu #RideForHope #HopeForRareDiseases
Apr 1
Mark your calendars! On Friday, September 19, 2025, VELO BLU returns for another unforgettable ride through the scenic landscapes of Niagara-on-the- Lake. Whether you`re taking on a challenging route or joining our curated experiences, every moment supports groundbreaking gene therapy research. Let’s ride, celebrate, and make a difference—together.
#BluGenesFdn #VeloBlu #RideForHope #HopeForRareDiseases
Catherine and Jack’s journeys are a testament to the resilience of families fighting rare diseases. Jack, diagnosed with SPG4, faces mobility challenges, but his family is determined to find a cure. Katherine, diagnosed with Tay- Sachs, is part of a critical clinical trial offering hope for the future. Their stories remind us why funding research at institutions like @umasschan is so important— because no family should have to fight alone. 💙
#BluGenesFdn #TaySachs #SPG4 #RareDiseaseResearch #HopeInScience
Mar 31
Catherine and Jack’s journeys are a testament to the resilience of families fighting rare diseases. Jack, diagnosed with SPG4, faces mobility challenges, but his family is determined to find a cure. Katherine, diagnosed with Tay- Sachs, is part of a critical clinical trial offering hope for the future. Their stories remind us why funding research at institutions like @umasschan is so important— because no family should have to fight alone. 💙
#BluGenesFdn #TaySachs #SPG4 #RareDiseaseResearch #HopeInScience
Tay-Sachs is a rare and fatal genetic disorder that progressively destroys nerve cells in the brain and spinal cord. Caused by a mutation in the HEXA gene, it leads to severe neurological decline, with most infants diagnosed rarely living past the age of four. With no cure available, gene therapy research offers the greatest hope for families affected by this devastating disease.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 28
Tay-Sachs is a rare and fatal genetic disorder that progressively destroys nerve cells in the brain and spinal cord. Caused by a mutation in the HEXA gene, it leads to severe neurological decline, with most infants diagnosed rarely living past the age of four. With no cure available, gene therapy research offers the greatest hope for families affected by this devastating disease.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Blu Genes Foundation is dedicated to funding and advancing gene therapy research for rare diseases. With 95% of rare diseases lacking an approved treatment, we bridge the funding gap to accelerate life-changing breakthroughs. By supporting pre-clinical research, we help move promising treatments closer to the families who need them most.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope
Mar 27
Blu Genes Foundation is dedicated to funding and advancing gene therapy research for rare diseases. With 95% of rare diseases lacking an approved treatment, we bridge the funding gap to accelerate life-changing breakthroughs. By supporting pre-clinical research, we help move promising treatments closer to the families who need them most.
#TeaForBlu2025 #BluGenesFnd #RareDisease #GeneticResearch #RaisingHope